Benefits and Work has obtained copies of “official sensitive” summaries of the responses to the “Modernising Support for Independent Living” Green Paper on proposed changes to Personal independence Payment (PIP).

The documents are for the attention of the Minister for Social Security and Disability and the Secretary of State, some of which are marked "Official sensitive".  

Although the consultation was started under the Conservative government, Labour allowed it to continue after they took power, receiving six thousand more responses after the date of the election.  However, they declined to publish any details of the results of the consultation and said they would not be responding to it.

At Benefits and Work we felt strongly that, after asking people to take the time and trouble to contribute, the government had a duty to share the results.

Initially, the DWP refused our request under the Freedom of Information Act to release any analysis of the consultation.

However, that decision was reversed on review, although substantial portions of some of the documents have been redacted.

Response numbers

The DWP received 16,071 responses to the consultation, made up of:

Postal: 134

Email:  1,593

Online individuals: 13,899

Online organisations: 445

Unknown organisations

The DWP summaries look at responses from organisations separately from individuals.  However, they only consider 115 organisational responses, even though hundreds more contributed.  This is because it appears that only those organisations who responded by letter or email could be identified.

As an accompanying letter to Benefits and Work from the DWP explained: 

“445 responses were recorded on the online form as coming from an organisation. However, the form did not ask for the name of the organisation. Thus it is likely that this category includes some responses from individuals.”

The result is that hundreds of organisations, including Benefits and Work, are not listed amongst the organisations who responded to the consultation because the DWP forgot to ask for organisation names in their online form.

Instead, all those organisations responses have been included in the individual respondent summaries.

Vouchers

Probably the issue that most readers will be interested in is how the suggestions that PIP should be replaced by a catalogue, vouchers, receipts or a one-off grant were received.

Amongst organisations, the DWP have recorded that 0% agreed with any of these suggestions, though a small percentage – from 16% to 9% -were neutral in regard to them. 

But overwhelmingly 92% of organisations disagreed with vouchers, 91% were against receipts, 87% were against a catalogue and 84% against a one-off grant.  Comments included:

"People should be allowed to choose how they want to spend their PIP to best help themselves.  They know what they need.  The suggested proposals  are unnecessarily  bureaucratic  & undermine a person's  ability to make decisions about  their  own  care  &  takes  away  their  control.”  Mencap

“Removing a cash payment removes the autonomy and independence of people to spend their PIP cash award freely.” - RNIB, Disability  Rights UK

The DWP assessed individual responses in a different way, looking at themes rather than percentage agreement.  Though overall, response to all the payment ideas was negative.

So for a voucher scheme, the most common theme highlighted in 45% of responses was that “it would identify individuals as benefit claimants,  potentially leading to discrimination,  exacerbated health conditions and reduced independence.”

One individual commented: “I hate the very notion of a voucher scheme for anyone,  as it stigmatises people and restricts what they spend their money on.  It's treating people like second-class citizens.  I think the government should allow people (who are already stressed and ill) to spend their benefits on how they see fit.”

Catalogues were also not popular with 31% saying there were no benefits to the idea and 29% saying that it would remove individual choice as to how they spent their money.

29% of people thought the one-off receipts system would be too complex, whilst 30% of respondents pointed out that a one-off grants system would not be suitable for ongoing or variable expenses.

As one respondent remarked:   “Most conditions that people claim PIP for are ongoing and potentially life long. A one off grant will cover some up front costs such as purchasing a wheelchair but wouldn't help with maintenance or with any of the regular day to day living expenses that are increased for those who have disabilities.”

Overwhelmingly negative

It is clear is that the vast majority of the suggestions for change made in this consultation were badly received.  For example, few people thought that placing more emphasis on what condition a claimant has, rather than its functional impact, was a good idea.

But some ideas, such as claimants not needing to be reviewed if they have a specific health condition or disability, were responded to more positively.

Often however, the DWP’s analysis of individuals’ responses is imprecise and not entirely clear. This is almost certainly because this was a hasty written and badly designed consultation which was not properly tested before being released. 

The failure to capture organisations’ names is just one example of errors that should have been picked up before the online consultation was ever published

So, when the DWP tried to analyse the results of the consultation, it has very obviously struggled to do so, not least because there were so many confusingly worded, open questions.

We’ve published all the documents we obtained so that readers can discover for themselves, as far as it is possible, what responses were given.   

What is very clear is that the DWP will have to do far better with its forthcoming green paper on welfare reform, if it is not going to find itself back in court due to the inadequacy of its consultation process.

 Downloads

Review of 1,600 individual consultation responses
This is an analysis of the responses by a sample of 1,600 people.  Although the Agree/Disagree questions cover the responses by 14,344 people.

Charities and Organisations Green Paper Response Summary 16 August
This summary provides "a detailed review of 25 influential charity and professional organisations" responses.

Charities and Organisations Green Paper Response Summary 30 August
This summary provides a detailed review of all 115 organisational responses.  Note:  many organisations including Benefits and Work are not included here because the online questionnaire asked whether you were an individual or an organisation, but then failed to ask for the name of your organisation.  So, the DWP collected what looks like responses from hundreds of unknown organisations.

Modernising Support for Independent living - Consultation Response Overview slides
This is a set of slides which review 350 individual responses, out of a total of 9,700 responses that had been received at the time the exercise was carried out.

Response topics
We're not entirely sure what this document is.  It contains lists of general and granular topics

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  • Thank you for your comment. Comments are moderated before being published.
    · 3 days ago
    I’m reading that any changes to pip are proposals and any changes cannot be implemented until after next general election
    Is this correct?
    Thanks
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    I am so grateful to all the B&W people/campaignors who are fighting our cause. Keeping us informed and updated with what’s going with DWP on our disability benefits 
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    PIP is not just there for equipment and living costs. Its is a way of ensuring disabled people are not living in poverty because they CAN'T work. The current UC benefit levels are barely sufficient for survival, let alone living. Without PIP disabled people would be stuck at home with no social life and none of life's little luxuries because they can only just afford to heat and eat. We deserve a standard of living that is at the very least comfortable and in line with the average wage packet. 
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    I will be passing on this information to my MP and urging them to act on it to ensure the the current government are questioned on their intentions in view of the results

    Has this been release to the media?
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    This just confirms that the DWP is not  about helping ..it is purely a cost saving department who  say yes but really  mean no ...I had the same questions around Motorbility if they  made it a voucher scheme , plus how long will  it take to  get any  money back  from DWP  if you have to  recoup  costs .Frankly  the whole issue around PIP  has become SO SO  stressful , I have progressive MS and well  my chances of recovery  are ZERO   , however i am feeling totally bullied to  try  and go back to work in some capacity.Liz  Kendall like Mel Stride has absolutley no  idea what  most disabled people go  through on a daily  basis , plus the pathetic amount  that my wife is paid as my  carer ...MPs are being given a 2000 pound plus rise a year .... whilst PIP is rising by roughly by 1 pound 70 a week  ... and these MPs make the rules !!!!!!!!!!!!!!!!!!!!!
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    How could anyone be beutral to this >>>>>

    Amongst organisations, the DWP have recorded that 0% agreed with any of these suggestions, though a small percentage – from 16% to 9% -were neutral in regard to them. 
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago
    If a voucher scheme is implemented, what will happen to schemes like Motability? And fuel for Motability vehicles? 
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @Matt It would worth mentioning on the point of vouchers being used to purchase items.

      I am pretty sure that past Government departments introduced this as a way of supporting individuals, and families including asylum, and refugees in the UK.

      I believe this was challenged in courts, and deemed to be against human rights, and breached a number of other protected pieces of legislation.
      I remember that a swathe of evidence that related to vouchers were demeaning, arbitrary, socially damaging and had serious concerns that was akin to identifing anyone using vouchers on support, or in this current case as disabled.
      I remember anecdotely witnessing a family presenting vouchers at a well known UK supermarket check out, as the mother was counting out the little slips of paper, the que of shoppers waiting verbally insulted the family , calling them wasters and scum. As they finished eventually paying for some bits to feed the family , the que clapped them off. The cashier even turned to the que and said how disgusting that how many on benefits come to the shop.
      I was of the opinion that the Government of that day withdrew vouchers, and coupons, as ordered by the court decisions.

      I very much hope that this way of providing award assistance will never be used.

      I am sure there will other poster that will remember this happening.

      I would also like to mention that those with mental health illness that have this as their primary award evidence are clearly on the radar for the DWP. I do have a question to ponder...  when the consultation period opens again, will the question be asked of what is the waiting list to see a mental health professional currently in England, Wales, NI ?
      What is the current shortfall of professionals in post currently.
      Will the professional clearly state that the patient is unfit for any work, and if not is the DWP going to change the distriptors to question work ability, as we know PIP is not means tested, or work restricted.
      Also will assessors reading drug prescriptions identify items like Floxitine, Gaberpentine, Pregabilin and others identify mental health issues. This meds are used for pain, and other serious health issues.
      Finally I wonder if there was a straw poll of employers in the UK how many would rather employ those with no illness or disability???? With Government subsidy or discounts...not many I fear.
      I think health and safety legislation. And company insurance who question too much.

      Phil

    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @Bionicbits There seems to be zero support  around the proposed voucher scheme.I think that it would be impossible for this daft idea to ever be implemented
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @Bionicbits There will be no vouchers 
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago
    We have to have a say on the coming consultation and we have to say a big NO for any suggestions that may:
    * increase the threshold of PIP.
    * make pip mean tested.
    * introduce one-off payment.
    * more regular assessments.
    * strict to eligibility for pip.

    We are lucky to have the previous consultation that has been ignored to have a thoughtful thinking about how the deep state thinks about PIP.

    Please please engage with the coming consultation.
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @Tortoise I am going to rant a little..but important points everyone is raising.So had to mention my situation. Let me know if anyone is in a similar position.

      Slightly different situation to Tortoise, I am on PIP, was on WTC, had it stopped as over the savings allowance, as my mother gave me a French legal donation allowance to her child. These savings were my downfall, even though they were a blessing.These are for potential rare surgery- one in the 5 figures the other in the 6 figures, that is not counting the travel if the surgery is abroad,( which it would be), as not many surgeons in the world who can do this procedures. My savings wouldn't cover it anyway.

      Can't be seen by the NHS, as the only 2 rare conditions centres in the UK are not taking anyone on, one waiting list closed due to an overwhelming demand. So I am having to go PRIVATE, NO CHOICE and spread out the cost. I look at where the NHS can do certain tests like MRI etc.

      You see my position.-  A disability charity said she wanted to help me and take me to a tribunal, as she felt this money is for my disability. As I can't live off these savings.  I have no other choice.. 
      So vouchers or help 'means tested' or not. 

      Every human and their needs are different, and they should assess their basic needs and situation. The DWP should keep what they have put in place high and standard PIP and re instate the independent living too - Listen to their clients complex needs for any additional financial support ( especially if you are not in the bracket of severe disability like myself).. 
      Every one should go to the end and go the tribunal process, I have been avoiding it for years, as my high mobility went down by 2 points a few years ago.
      This year I am going all the way and getting support by this disability support worker for this charity. Don't hesitate to ask these charities, they can help, I wish I had done this years ago.

      The DWP should give some extra money if the situation is more complex and to give separately - VOUCHERS FOR AIDS, THERAPIES OR (PRIVATE SPECIALISTS if the wait on the NHS is too long.) They mentioned the private help if the NHS waiting lists are too long, I have a carte Blanche for the UK to see anyone for a grant, yet when you ask the specific centres or specialists, they can't do it geographically. That didn't work for me, I asked!! 
      Maybe someone can enlighten me.

      For the vouchers -they should give a good varied amount On top of everything else, as a bonus every year or monthly to every individual who is disabled- no questions asked!!! That will never happen, but you can always hope.
      The savings bit gets me:  My money is there in a bank account. I can't even put it in a savings account as the financial bank advisor manager says that if your conditions are progressive;, he cannot allow by law get me to invest that money, as I would need it to survive and cannot put me in that vulnerable position. So either way stopped in both directions.

      I lost my UC due to this in the transfer. But had a 12 months protection transitional period. The UC transitional period was so stressful, that me and my partner decided for our health to live off his state pension and my PIP instead for 12 months, as it would stop anyway after the 12 months due to my savings. I am trying to stay as self employed, but it is very difficult and I am having to rearrange my whole planning from home, seeing how many few hours I can do to stay afloat in the work setting.

      One of the UC transitional workers over the phone opened to me and mentioned that the WTC transition to UC was catastrophic; as 70 to 80 % of the calls he received were people not going ahead with UC due to the mental and physical stress it incurred, the system going into every fine details of your life, every month asking where you were at with your work, income expenses. The HMRC once a year is enough stress being self employed. They don't get it one bit!! Leaving people who needed the very few savings they had to use them.
      The system is flawed as you all know!!
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @Steve I certainly will if I can find it, the DWP has a tendency to hide it, or leave it to the last minute to tell people about it.
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @Alex It's based on need, not wealth.  And I think you'll find that wealthy people don't even bother to claim it!  Because why would they go through all those assessments etc, if they don't need the money?  :-)  Where would the bar be set for means testing?  It could exclude those who really need the extra help but have a reasonable income.  So no - means-testing isn't appropriate.  The wealthy will not be claiming PIP.  They can still get a blue badge without claiming PIP - if needed.
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @Alex How can you means test disability? 
      The disability benefit goes towards the additional things you need when you’re disabled! The poorer people can use PIP to access further benefits that are means tested!
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @Alex It is also meant to support disabled people who work. It is not an out of work benefit. So therefore can’t be means-tested.
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago

    As for the vouchers: PIP assesmant, MR/Tribunal, costly voucher aprooval = like the good old: "hung, drawn and quartered"  of the dissabled
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago
    I contributed to this and I'll be extremely angry if our views are now going to be ignored. 
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    · 17 days ago
    Surely a disabled person who can barely work is taking a job away from a abled bodied person .
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    Tell your local New Labour mp .. politically you are finished .. if you are as disabled as I.. get straight on to your local  mp yours ..  s 
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      · 8 days ago
      @anthony sibley I had a great MP before the election But with boundary changes and my previous MP getting sepsis and now due to amputations being disabled unable to continue as an MP We now have a MP who was parachuted in to now a very safe seat Who seems only interested in her career progression
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @S Our local MP is in her 20s and is more worried about potholes and getting kids interested in politics ..PIP/disabled people  are at the bottom of her agenda 
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    Thank you b&w for putting post up. I really do think if you have a diagnosed life long disability condition and need help with most activities ie washing and dressing etc etc there are many  human act laws to protect the disabled people. This government differently needs real disabled people who have to live with these terrible conditions and hear their inputs to get us in their side than maybe government can show passion to us all 
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    This is great news. Does this mean then the DWP have to leave us alone?
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    · 18 days ago
    Thank you to the B&W team for uncovering this information.

    I suspect many claimants took time to consider and phrase their responses carefully despite the poorly worded questions. It is disappointing to learn that I have wasted an afternoon responding to a consultation that in hindsight, was not fit for purpose. Thus we will need to go through the whole procedure again, even though we are unwell and often exhausted.  Fight on we will though as experience suggests they are hoping we will give up and go away.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 days ago
      @Prudent The questions were not the right ones and were phrased in such a way to try to manipulate the answers I for one got very frustrated and did not complete it As I felt a decision had already been made and the results would be manipulated So was it worth me commenting How many others did the same as I did ?
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Bert Bert .. the Americans are 379 trillion in debt ... do they look worried .. all they do is make bullets and bombs ..  oh and print money .. Don't capitulate Bert.. no politician has the political right to put you in an early grave .
      Yours ..s 
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @tom The government have no money owe 2.8 trillion
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Prudent It’s still worth filling out as hopefully the dwp got the point that 1600+ cares enough to spend time to fill in a very lengthy form

      If less than 100 responded the dwp would of used that as an excuse to do whatever the hell they like (we got some concessions in the wca consultation but not many as not many filled it out)

      If the dwp didn’t read the responses properly and that’s on them (and if that’s obvious from the official dwp response then that could be used as evidence in a future lawsuit that the dwp continue to cut corners and not do things in the honest and correct manner)

      I think if anything for the upcoming wca consultation rerun the disabled community should aim for 10k+ individual responses 

      Yes details of responses are important - but facts and figures such as number of responses are just as, if not more important as it conveys the message that ppl are interested and changes can’t be silently pushed through, that the disabled community won’t stay silent in all this
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Prudent Hopefully It will be shelved , Because it is insanity ,
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    It appears that about 95% of the thousands of responses were negative and the other 5% were from Fraser Nelson.

    Is there a bigger waste of time than constantly assessing people with lifelong conditions that have already "passed" multiple assessments already?  It is basically performative cruelty to titillate the press. 
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @Louise I agree with you. These  assessments are there to trip people up. I have just had a telephone assessment which was 3 hours long. The dwp kept asking the same questions a different way around. I have kept my award but the stress it has caused me has increased my anxiety. I have several physical conditions and anxiety and depression caused by stress of everything else that happened to me. I now hope so more assessments due to my age.
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @sausage belly I'm just being realistic
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Dave Dee
      It's ideological with Nelson. He's a dyed in the wool neoliberal Thatcherite: rich = good, poor = bad; private sector = good, state sector = bad. It's really as simple as that with him, with the exception he's far less bothered about massive amounts of public money regularly going to subsidize the rich. IMO he also believes in the "Just World" fallacy: the rich "deserve" to be rich because they're hard working and smart, the poor "deserve" to be poor because they're lazy and dull.

      Specifically with benefits, I suspect he thinks the more that gives big business and capital as much power to exploit the "lower" classes the better. His concern about welfare fraud is frankly performative IMO - he must know that it's been consistently shown to be trivial in overall terms and dwarfed by tax evasion or avoidance. What he really wants is for substantial benefit cuts to the poor to fund tax cuts to the rich.

      Also, similarly to unions, sickness and unemployment benefits can act as a safety net or "bargaining power" against exploitative working conditions. They give you a much needed "breathing space" to deal with the stress caused by toxic work environments and management before you look for a better job, or can give you the security you need to challenge those toxic conditions without fear of immediate poverty if they sack you. Cutting them strengthens the hand of the bosses against that of the workers and unions.
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Louise 5% negative fraser Nelson and Bert posting here on B&W it seems!
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Louise No, it is great money making business idea.   Sadly, they will never run out of work...  No politytian or their families should be allowed to have shares in such enterprise like ATHOS.   Thos assesment centers, should be NON profit!
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago

    It's bewildering there are actually lawmakers out there who still think "disabled people = Buy everyone a wheelchair and yup, that's it, good to go..." when in the real world, the most severely disabled people usually need ongoing help from other people a lot more than they need to buy one off 'things' from catalogues.

  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    I have epilepsy&multiple learning difficulties&special needs. I can’t work yet Am super stressed&anxious that the Labour Party may force me into a job I can’t do . I still have black outs a few times a week due to my epilepsy and headaches that last a few days .Am very worried&nervous and reeves isn’t gonna say more until end of March which is a long time away 
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @tom Tom I am having posts denied on here . And yes tom to that post
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Tomf DUTY OF CARE, SUE hem!!!!
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    All the pretense that they are trying to help the disabled. 
    Both Conservatives and Labour alike, have no interest in how we struggle to live our lives. 
    It's a money saving exercise, plain and simple!!
    It's disgusting and shameful, I'm absolutely sick of it all.

  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    What a surprise, nobody liked it.  No wonder they didn't want to release the results. 
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Alex PJ , yes son , yes son Yes son ! You nailed it boy !!!!!!!!! You saw through starmers tribes LIES .
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