The DWP have revealed the draft criteria they will be using to select claimants for the Severe Disability Group, which will allow fast-track claims for disability benefits.  Benefits and Work would like to know if readers with severe, lifelong conditions think they would meet the criteria.

What is the Severe Disability Group?

The purpose of the Severe Disability Group is to improve the disability benefits assessment process for claimants who have conditions which are severely disabling, lifelong and with no realistic prospect of recovery.

Claimants who fit the criteria will not need to complete a detailed application form or go through a face-to-face assessment in order to claim personal independence payment (PIP) or to be found to have limited capability for work-related activity (LCWRA) for employment and support allowance (ESA0 or universal credit (UC).

The introduction of a Severe Disability Group was first consulted on in the Health and Disability green paper in 2021.

The resulting Health and Disability white paper published in 2023 revealed that design and testing of the Severe Disability Group had already begun.

The DWP have now announced that they are widening the testing of the Severe Disability Group, with two separate tests taking place, both relating to PIP.  There is more on this below.

How the Severe Disability Group works

Where a claimant is considered likely to meet the criteria for the Severe Disability Group, a short form will be sent to their specialist clinician.  The form is similar to the SR1/DS1500 form used for claimants who are terminally ill.

You can download a copy of the SR1 form from the response to this freedom of information request.

If the specialist confirms that the claimant meets the criteria, they will not be required to attend an assessment and will no longer be required to fill in complex forms, such as the PIP ‘How your disability affects you’ form or the ESA50/UC50.

Testing the criteria

The DWP are currently running two tests of the draft Severe Disability Group criteria

One test involves asking a selected group of clinicians to identify patients they believe are suitable.

The other test involves the DWP contacting claimants they consider to be likely to meet the criteria and asking if they would be willing to take part.  If they are, the DWP will then contact their clinician and ask them to complete a brief form. 

The DWP have said that participation is entirely voluntary, claimants can withdraw at any time and they “will not be financially disadvantaged by taking part.”

Official criteria

In order to meet the Severe Disability Group criteria, the DWP say claimants must :

have an irreversible or progressive condition, confirmed or managed by a secondary care specialist, with no realistic prospect of improvement 

have had no significant response to treatment, or treatment will not improve function, or no further treatment is planned

have a severe impairment of physical or mental function (or likely to develop this within 6 months) such that they need assistance from another person to complete two or more activities of daily living

The Secretary of State is satisfied that, for the individual patient the criteria have been fulfilled for: 
enhanced Personal Independence Payment (PIP) daily living or mobility components
functional limited capacity for work-related activity (LCWRA) or support group

Our interpretation

There is no published official guidance on how to interpret these criteria. So, please be aware that the definitions below are our understanding of the criteria, they are not official definitions.

An irreversible condition is one that may not deteriorate further but will also not improve, such as a learning disability, ADHD, spinal cord injury or cerebral palsy.

A progressive condition is one that is known to deteriorate, such as osteoarthritis, Parkinson’s disease, COPD or Alzheimer’s disease.  

A secondary care specialist is someone who is not in the first line of treatment.  So, a GP or mental health nurse would not be included, but a cardiologist or a psychiatrist would be.  It appears that you don’t need to be currently seeing a specialist, but you need to at least have had your condition confirmed by a specialist.

There is no planned treatment that will improve your condition further.

Your condition needs to affect two or more activities of daily living to the extent that you need assistance from another person.  These activities aren’t defined, but the list of PIP daily living activities would seem to be a likely place to start.

For PIP, you need to be able to meet the threshold for an enhanced award of the PIP daily living or mobility component.  If you don’t already get an award, you can check the criteria using the Benefits and Work PIP test.

For UC or ESA, you need to meet the criteria for being in the LCWRA group or the support group.  If you don’t currently get either of these benefits you can our UC WCA test for LCWRA or use our ESA test for the support group.

Would you qualify?

The DWP say they worked with specialist health professionals to develop the criteria and also consulted with several charities.

But, as always, they don’t seem to have talked to any of the claimants who will be on the receiving end of this system.

So, we’d like to hear your opinions and queries about the criteria in the comments section below. 

And, if you currently get at least one component of PIP at the enhanced rate or you are in the LCWRA group for UC or the support group for ESA, do you think you would meet these criteria and be eligible for the Severe Disability Group?  Or is there something about your condition, your contact with health professionals or something else that you think would threaten your chances?

You can read the full Severe Disability Group test: information for clinicians  Please note: considerably more details about the Severe Disability Group criteria were added to the DWP web page on 27 February.

Comments

Write comments...
or post as a guest
Loading comment... The comment will be refreshed after 00:00.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Well I have severe Ménière’s which gives me horrendous brain fog and dizzy spells it’s not going to get better but I’m no longer under a specialist as I have had the illness for about 20years. Plus osteoarthritis and like me many claimants only get seen by their GP not a specialist so that’s not going to work with DWP… they make these dreadful rules without consulting the claimants. I feel so persecuted because I’m sick which is something I never envisioned for life to have 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    For ME/CFS, which is a very disabling and so far untreatable complex ,multisystem disease affecting a very large number of people, there are almost no specialists in the UK to see patients, and almost all of us are only able to access diagnosis and care from our GPs. (See NICE Guideline NG206) Where there is a local clinic giving diagnosis, they only see patients briefly once and the patients then do not get a chance for ongoing care, and they routinely refuse to see patients who are Severe or Very Severe as we are not even well enough to attend hospital appointments or undergo tests. In addition, many GPs are unaware of current diagnostic criteria and are still dismissing patients with ME/CFS because they have muddled it. up with the single symptom of chronic fatigue, which arises from any number of other conditions, and for which exertion is not harmful. ME/CFS on the other hand has the now internationally accepted and defined characteristic symptom of Post Exertional Malaise, which is harmful and strongly associated with deterioration. This is why graded exercise therapy is banned for us, we cannot safely 'push through'. It is vital the DWP assessors understand and recognise this. 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @ER I agree. The new guideline for ME from NICE (October 2021) and the Dept of Health consultation on ME last year, both acknowledge that ME is very poorly understood by health professionals across the board. I speak to groups of medical students about ME at my local university on a regular basis and most have never even heard of ME. My GP calls me an 'expert patient' and admits that she has not read the new guideline and that I have a far greater understanding of ME than she is. I have little or no hope that any of these 'specialists' will have a good understanding of our very complex disease.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I am in a similar situation to “Porridge” where I have a lifelong disability which can only deteriorate and have been discharged from the specialist clinic as they can do no more for me, so I do not have a specialist clinician.  I am now housebound but when I was able to attend my GP surgery there were no available appointments even though the GP I saw had asked to see me again regarding a newly diagnosed chronic heart and lung condition (the lack of appointments was a recurring problem).  I have not seen my current GP regarding my disability as nothing can be done, and for other issues I have contacted any GP in the practice.  Hence I found under “freedom of information”, when DWP contacted my GP, he replied that he had not seen me (so I cannot rely on further supporting evidence).  
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I suffer psychotic bipolar type two and ADHD, registered SMI (designated permanent impairment by my psych) and blue badge. Currently getting higher rate daily living and lower rate mobility for PIP. I think I’d qualify, I’d hope so anyway
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I believe I would as I have permanent loss of hearing to a very high level  and I have lost the use of vision on my right side also permanently with the vision impairment to my left is increasing too all damage which occurred including the aforementioned conditions are permanent and therefore untreatable .
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    As Jenny says below I was discharged from Secondary Care  as they felt they could offer me nothing else after my  "therapy" finished. I have chronic OCD/anxiety /depression. Despite my plea to not be discharged I was. Therefore would I qualify? I have had my condition  confirmed by a psychiatrist years ago though? But would I need to be in current Secondary Care? 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Rachel Did it not mention condition diagnosed by a specialist? Would that not be proof no matter how many years ago 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Background:  I am currently awaiting an outcome to my PIP renewal which was submitted to the DWP in June 2023 of which I have had no feedback. They extended my claim by another 9 months and it runs out in 6 weeks.  I am on the highest award level for both daily living and mobility and have been for the past 9 years. My first award was for 3 years, second award for 6 years. I suffer with chronic spinal nerve damage in my lower back and severe pain and weakness in my left arm and leg from a stroke. As of last year my partner became my paid carer through the DWP although she has always assisted me in washing, cooking, medication and taking me out. I was on the highest element of Contributory ESA but cancelled that last year and took my private pension early so my partner could retire and help me more.

    My conditions have never improved and either remained the same or deteriorated. The problem being I now have cognitive issues and am under a neurologist for further treatment as I have no short or long term memory.  I am also on a waiting list for one final roll of the dice with the Pain Clinic for a nerve denervation procedure to burn the nerves in my lower spine.

    I believe I would be a suitable candidate for this programme/scheme. However, my concern is the DWP contacting a specialist in the Pain Clinic for their views. Depending on the mood or disposition of the consultant means one could end up with either a positive or negative response, which ultimately could determine your fate from a person that may have only seen you once or twice or in my case 3 times in 15 years with very little enthusiasm or rapport from the specialist. Clearly, my GP's understand my daily struggles far more than any consultant. To the consultant you are just a number. I have been on this waiting list for nerve denervation for 10 months with no idea when it will take place. 

    To put it in a nutshell, I would not trust my consultant to write a positive report to the DWP who in turn could use this report actually to fail my application.  I feel more confident using the 40+ letters from doctors/physio/psychologists/pain nurses etc than a response from an extremely busy consultant who has no real idea what you are dealing with on a day to day basis and views the request from the DWP as just another piece of Admin.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Do you really think your GP has the time to fill out a long detailed  form for your benefits. That's even if they remember who you are.  They don't even have time to see a patients these days .  GP answers one wrong question in a rush. Game over . Your be looking forward to seeing your work coach who recommends the night shift factory work  to improve your health. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I've had Rheumatoid Arthritis for 45 years. on my PIP form my specialist said - no chance of recovery. I'm on enhanced mobility. So I'm getting it, Defo !!!    :-)
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I am 67 and on full pip for 10 years (to be reviewed about 2030)... and state pension... does this mean I could be taken off this ?  nothing has changed... got a few more ailments... I hardly ever get to see the same GP... if I can even get a f2f appointment  !!  I remember  when my gp got forms he had to fill in... he was angry with DWP asking him .. and said..."how on earth do they expect me to know about your daily living etc?  I'm not with you 24 hours a day ??! "

    amongst my ailments I have chronic fatigue and fibromyalgia  but I know a lot of  GPs don't even think it's a thing !! ??   but it's funny how since covid and people  have now got long covid that they are prioritised?? ... with virtually the same symptoms of CFS/FIBRO??   you can't make it up can you ?   I take countless meds each day that also make me sleepy... I can't even socialise!  I'm always bring invited to family arrangements  and outings which I have to turn down as I'm so exhausted/tired... im NOT  bed bound... but not far off it !!
    Sorry... this isn't a " woe is me" post... but just explaining that any GP or specialists  can't  account for how my life is around the clock ... the light at the end of the tunnel is just another train ! 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Amongst other conditions I have COPD confirmed by Spirometry assessment carried out by a  specialist nurse, I am currently under the care of my GP and the practice Nurse practitioner mainly for when I have a flare up. I don't think I would qualify as although my condition(s) are well documented I don't have a secondary care specialist (as far as I know).  So I have a confirmed progressive condition that is irreversible but probably wouldn't qualify due to not having a consultant! Crazy 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I'm Appointee for my adult son who has Autism. He gets PIP enhanced daily care and is in the Support group of ESA. He does not see a "specialist secondary care specialist" because they do not exist for people who are autistic. Mental health team, ie a psychiatrist, refuse to see him as he has autism, therefore it's only the GP who helps manage his problems. My son was diagnosed when he was a child but then his autism was called Aspergers syndrome. He's been seen at Neurodevelopmental ASD service a couple of years ago and has a report from them, they only give help for one year due to funding problems so he's no longer under them. They also do not say in report that autism is an enduring lifelong disability which the GP always writes in reports. So I'm not sure DWP would put him in the Severe Disabiity Group even though he already gets Severe Disability Premium.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I’ve never had a secondary care specialist as my doctor diagnosed my M.E. and depression over 20 years ago. I get enhanced rate for both PIP components but without a secondary specialist’s input I doubt I’d qualify. Thankfully I’ve got an ongoing award now so I’m hoping for only light touch reviews in future. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I'm on high rate PIP for both mobility and care but I have multiple conditions Fibromyalgia was diagnosed 35 years ago, consultant long dead; another consultant long dead. My  main problems are now spinal but he pain clinic can't offer any more treatment, I am not seeing any specific consultant for any of the spinal conditions so who on earth would they ask? There's only one GP at our practice who fully understand. I've been on high rate PIP now for 30 years so I obviously qualify but where  could I get proof?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I think my problem with this one would be that although I was diagnosed by a psychiatrist with bipolar disorder and currently get enhanced daily living along with standard mobility, I’m no longer under secondary care. I had too many horrible experiences under them and now my GP manages my care. If a letter showing the diagnosis from the consultant is enough I may well qualify but if they want current contact with a consultant then I can’t provide that.  
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I get full PIP for personal care and motability. I have severe COPD and asthma I have recently had CT scan that confirmed serious damage to my lungs. Severely limiting my breathing. I also have Rheumatoid Arthritis for over 30 years. It has recently been confirmed that my RA also attacks my lungs. I have had 5 biologic drugs that failed to control my RA. I am now about to start a brand new Biologic. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Without being flippant or a scaremonger, my worry is this is another trick to reassess the most vulnerable claimants and reduce or take us off benefits??
    If you apply but the (insert your choice of insult) at the DWP decide you don't qualify, are you opening yourself up to problems? 
    For example, I have had severe CFS for 26 years. Under NICE Guidelines CFS is incurable and can only be managed through pacing and CBT etc. So those of us bedbound/housebound should automatically qualify. But, try getting a referral to a CFS unit, or being able to get there or a GP who understands PEM!! 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    EHLERS Danlos syndrome and Postural orthostatic tachycardia syndrome (plus a whole raft of associated secondary conditions) affect all three of my (now mid 20’s) children. They have confirmed diagnosis’s from a raft of top specialists at major London hospitals. It’s genetic (so won’t improve) and there is currently no treatment or ongoing care they say can be offered to improve anything - so a case of ‘put up with it’. 
    Two received enhanced care and full mobility elements of Pip. It would be a godsend not to have to go through the whole review process again, as nothing changes with them. 
    It’s such a stressful, time heavy, worrying time and if this new category actually works (I’m too cynical after 15 years of assessments/DLA/PIP/Esa experience) I would hope genetic conditions like EDS are included! The rarer the conditions seem to constantly be overlooked on lists, despite their daily impact :( 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I’m concerned about the need for a secondary care specialist. My daughter is autistic (amongst other conditions) she’s 20 and was diagnosed at 7, it’s unlikely that she’ll improve any. Currently on higher rate mobility and care pip and UC LCWRA. She doesn’t go out alone and needs support for all her daily living so should meet the criteria, however, she doesn’t have a secondary care specialist who could sign the paper, she isn’t under any care for autism and I suspect there will be many people with the same problem 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Jenny. I'm 55 in a few weeks, dx'd AUDHD 3 years ago. I paid for the assessment out of a backdated PIP award and, although the same clinic also later received my NHS referral, I doubt the Psychiatrist would freely complete a DWP form. I've had no contact with the clinic since and no other secondary care. Received Enhanced both for 3 years, just completed a review and only received another 3 years.

      Also have an energy limiting condition and degenerative spinal issues. No secondary care for those either, albeit the spinal surgeon I saw once a couple years ago might consider filling a DWP form.

      I'm sure most specialists won't be willing to participate if they haven't seen the patient in over a year. Unless maybe they have clear notes which directly answer the questions posed.

      That means many thousands of us trying to get on with our lives without being an unecessary burden on the NHS will fall through the cracks yet again.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Jenny. Exactly my son has severe learning difficulties but only sees his own GP so no specialist?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    how about blind people who have no chance of regaining sight. it's possible to get into sg on communication and full pip is also possible too.

Free PIP, ESA & UC Updates!

Delivered Fortnightly

Over 110,000 claimants and professionals subscribe to the UK's leading source of benefits news.

 
iContact