The DWP have revealed the draft criteria they will be using to select claimants for the Severe Disability Group, which will allow fast-track claims for disability benefits.  Benefits and Work would like to know if readers with severe, lifelong conditions think they would meet the criteria.

What is the Severe Disability Group?

The purpose of the Severe Disability Group is to improve the disability benefits assessment process for claimants who have conditions which are severely disabling, lifelong and with no realistic prospect of recovery.

Claimants who fit the criteria will not need to complete a detailed application form or go through a face-to-face assessment in order to claim personal independence payment (PIP) or to be found to have limited capability for work-related activity (LCWRA) for employment and support allowance (ESA0 or universal credit (UC).

The introduction of a Severe Disability Group was first consulted on in the Health and Disability green paper in 2021.

The resulting Health and Disability white paper published in 2023 revealed that design and testing of the Severe Disability Group had already begun.

The DWP have now announced that they are widening the testing of the Severe Disability Group, with two separate tests taking place, both relating to PIP.  There is more on this below.

How the Severe Disability Group works

Where a claimant is considered likely to meet the criteria for the Severe Disability Group, a short form will be sent to their specialist clinician.  The form is similar to the SR1/DS1500 form used for claimants who are terminally ill.

You can download a copy of the SR1 form from the response to this freedom of information request.

If the specialist confirms that the claimant meets the criteria, they will not be required to attend an assessment and will no longer be required to fill in complex forms, such as the PIP ‘How your disability affects you’ form or the ESA50/UC50.

Testing the criteria

The DWP are currently running two tests of the draft Severe Disability Group criteria

One test involves asking a selected group of clinicians to identify patients they believe are suitable.

The other test involves the DWP contacting claimants they consider to be likely to meet the criteria and asking if they would be willing to take part.  If they are, the DWP will then contact their clinician and ask them to complete a brief form. 

The DWP have said that participation is entirely voluntary, claimants can withdraw at any time and they “will not be financially disadvantaged by taking part.”

Official criteria

In order to meet the Severe Disability Group criteria, the DWP say claimants must :

have an irreversible or progressive condition, confirmed or managed by a secondary care specialist, with no realistic prospect of improvement 

have had no significant response to treatment, or treatment will not improve function, or no further treatment is planned

have a severe impairment of physical or mental function (or likely to develop this within 6 months) such that they need assistance from another person to complete two or more activities of daily living

The Secretary of State is satisfied that, for the individual patient the criteria have been fulfilled for: 
enhanced Personal Independence Payment (PIP) daily living or mobility components
functional limited capacity for work-related activity (LCWRA) or support group

Our interpretation

There is no published official guidance on how to interpret these criteria. So, please be aware that the definitions below are our understanding of the criteria, they are not official definitions.

An irreversible condition is one that may not deteriorate further but will also not improve, such as a learning disability, ADHD, spinal cord injury or cerebral palsy.

A progressive condition is one that is known to deteriorate, such as osteoarthritis, Parkinson’s disease, COPD or Alzheimer’s disease.  

A secondary care specialist is someone who is not in the first line of treatment.  So, a GP or mental health nurse would not be included, but a cardiologist or a psychiatrist would be.  It appears that you don’t need to be currently seeing a specialist, but you need to at least have had your condition confirmed by a specialist.

There is no planned treatment that will improve your condition further.

Your condition needs to affect two or more activities of daily living to the extent that you need assistance from another person.  These activities aren’t defined, but the list of PIP daily living activities would seem to be a likely place to start.

For PIP, you need to be able to meet the threshold for an enhanced award of the PIP daily living or mobility component.  If you don’t already get an award, you can check the criteria using the Benefits and Work PIP test.

For UC or ESA, you need to meet the criteria for being in the LCWRA group or the support group.  If you don’t currently get either of these benefits you can our UC WCA test for LCWRA or use our ESA test for the support group.

Would you qualify?

The DWP say they worked with specialist health professionals to develop the criteria and also consulted with several charities.

But, as always, they don’t seem to have talked to any of the claimants who will be on the receiving end of this system.

So, we’d like to hear your opinions and queries about the criteria in the comments section below. 

And, if you currently get at least one component of PIP at the enhanced rate or you are in the LCWRA group for UC or the support group for ESA, do you think you would meet these criteria and be eligible for the Severe Disability Group?  Or is there something about your condition, your contact with health professionals or something else that you think would threaten your chances?

You can read the full Severe Disability Group test: information for clinicians  Please note: considerably more details about the Severe Disability Group criteria were added to the DWP web page on 27 February.

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  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    No,even though I have esa cont support group and higher rate pip I have been discharged from all consultants,this is a major problem,where do we stand now,?I feel this will be used to deny claims,either severe disability group or nothing,what do you think ?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I would definitely qualify as my condition, Charcot-Marie-Tooth disease, is a progressive, incurable condition.  I have had surgery (as do many other people with this condition) but its just to mitigate the worst symptoms, rather than effecting any kind of cure or improvement.  This would be fantastic, if it happened.  I've just got back onto enhanced mobility for PIP, after many, many years of an indefinite award of DLA mobility.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have an official NHS diagnosis of Functional Neurological Disorder and Electro Hyper Sensitivity (Severe). This reduces my life to fighting for survival and suffering, unable to concentrate to do much of anything at all. I currently have lower rates of care and mobility.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    This is terrifying. 
    I worry that I am not ‘ill/disabled enough’ for DWP. 

  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have severe heart failure which is progressive. I'm on a sackload of meds and have a pacemaker with built in defibrillator to shock me if I have a cardiac arrest. Would I qualify?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Typically, with a diagnosis of Autism, (Asperger's, PDD-NOS etc) there is no input from a health care professional unless you have a physical condition too. There is sometimes support via the Education system, but at age 25, that vanishes. How will people who are unable to cope with interaction by phone or f2f, and who don't have an Appointee to speak for them, be able to navigate the process of being reviewed every few years. As there is no health professional to refer to, these people won't be able to join this "fast track" scheme.... or would the professional who did a diagnosis 20, 30 or 40 years ago still be contacted ?  
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    i have a spinal cord injury, severe nerve damage, (every nerve ending in my body are damaged) disc damage in my neck, muscle wastage and weakness, my left hand is claw shaped and i am unable to use it properly, my legs shake whilst i am walking, my body is constantly burning and stinging
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    It confuses me. Can't get my head round anything at the moment. I get PIP low rate for care, high rate mobility. LCWRA from UC. Crippled with arthritis, walking non existent now, waterworks problem. Other stuff going on. Insult to injury  a cancer scare now. Not physically able to have more tests so don't know if I've got it or not. Time will tell. 
    My friend has a psychotic illness. He's so worried about all this . And that messes his head up even more
    Neither of us will get any better
    Confuses him too

  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I’ve noticed that many people are concerned about their GP not knowing how their condition affects their daily life a few weeks before my last review I wrote a short note describing how I was affected and what my life was like and they put it on file so that all of the GPs at the surgery can access it if they are contacted by DWP I have osteoarthritis in knees elbows shoulders  neck and spine and a degenerative condition of the retina that means I’m classed as sever visual impairment ,that was 4 years ago and I haven’t seen anyone since it was almost as if they said well your already classed as blind so how much worse can it get (I do have limited very poor vision )and discharged me from the clinic .im asssuming that my medical notes would provide the proof they need ?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I thought the whole idea behind Support, was support you need but may not get, if they are now saying if you need support then you will get support, this is never going to happen. As service providers of such support would have to employ thousands more workers to meet the demand. This is yet another tactic thought up by those who are paid to come up with them, to stop the DWP from having to pay benefits to those who need them....
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    It will be the same ‘Experts’ in Disability deciding people’s fates I bet using the same discredited, Fraudulent computer software…. 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Wat Tyler Agree. Hard to see any upside of this. Regardless of what some might say.
      If it works(should it come to fruition)
      Then brilliant for those involved. But are their ulterior motives. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    My husband has an Aquired Brain Injury and I have many disabilities but mainly heart problems and diabetes.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I feel that my husband would qualify and maybe myself. So I feel quite optimisti. But whose knows with the DWP, its a lottery
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have a rare incurable progressive neurodegenerative disease with no treatment that can reverse or stop progression, and am under a specialist team in London. I am also severely hearing impaired. I probably tick the boxes. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I don't see my GP much as I have to live with brain tumour, spinal problems, and many others, so if form goes to surgery the correct person and don't you as well, I had forms with unknown written on them, as GP are very busy  forms will  be missed, 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    My son was diagnosed 20 years ago, by a private consultant, with Autism and gets full rate PIP. He would meet all the criteria for the severe group except that the consultant he saw is now retired so there would be no way of contacting him.  This is quite worrying if the diagnosis is not simply accepted via his standard medical notes - everyone knows that Autism doesn't get better!
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have Rheumatoid Arthritis with Secondary Sjögren’s, Degenerative Disc Disease with Rotational Scoliosis, Fibromyalgia and ME. I’m only seen by a Rheumatologist. An orthopaedic surgeon and neurosurgeon both agreed that due to my age, further surgery on my spine would be risky, complex and with no guaranteed benefit. I use a wheelchair when out. I rely on my husband/carer for all cooking, cleaning, helping with personal care. I have enhanced rate PIP mobility and was given a 10 year award at my last review a few years ago. I was lucky (?) enough to have had that award before retirement age. It worries me that if the government decide to do this (a good thing, in my opinion), how are all claimants involved going to get the proof they require when waiting lists are so long, consultants have already lost contact and possibly patient records due to computer unreliability. Will it be down to GP’s to find all this information? Who can get an appointment to see a GP? I, for one, certainly don’t want DWP having access to my medical records as well as supposedly being given access to claimants bank accounts. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have ME which is a very poorly understood neurological disease. The new guideline for ME issued by NICE in October 2021 recognizes that ME  fluctuates but has no recognized treatments with a miniscule number of people ever regaining the former functionality before developing the illness. I've had several courses of 'treatment' at the local ME clinic for my region and was discharged from its care after my illness got a lot worse several years ago. 
    I won my PIP award after complaining against 2 assessment reports which lied about my illness and said that because it fluctuates and that my legs function I didn't qualify for PIP. I won enhanced rates for daily living and mobility.
    My concern is that these 'specialists' do not understand my illness. Both NICE in its new guideline and the Dept of Health in a public consultation in the autumn of 2023 recognize that ME is very poorly understood by health professionals and that there is going to be in years to come online learning modules for GPs to complete about my illness.
    My concern is what happens if I get sent to one of these 'specialists' who I am willing to bet any amount of money have little or no understanding of my illness?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have an FND diagnosis, but the doctor who prescribed it has a lot of weird views and I would not feel comfortable seeing him again, nor would I trust his opinion on my condition. None of his recommendations did anything. At this point I just manage it myself. I can see similar problems for people who would face referral to psychiatry.

    Also echo the comments about ME/CFS, POTS, long covid and other conditions doctors have wildly varying and odd/outdated/prejudiced views on. A lot of people with these have no realistic prospect of improvement but you would struggle to find a secondary care doctor to say anything useful about them at all, which is of course part of the problem. Assuming they would even talk to you.

    Taking more input from patients' doctors is potentially a positive step but a lot remains to be concerned about.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I see many people are questioning the need for specialist contact to claim the Fast Track Severe disability claim.  My son like many others just sees his GP was diagnosed ESN educationally sub normal with learning difficulties when about 3 yrs and has mental problems gets pip and ESA Support group a d his condition will never change.  But just sees his GP occasionally for his meds.  Where will that leave us who only see GP 

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