The DWP have revealed the draft criteria they will be using to select claimants for the Severe Disability Group, which will allow fast-track claims for disability benefits.  Benefits and Work would like to know if readers with severe, lifelong conditions think they would meet the criteria.

What is the Severe Disability Group?

The purpose of the Severe Disability Group is to improve the disability benefits assessment process for claimants who have conditions which are severely disabling, lifelong and with no realistic prospect of recovery.

Claimants who fit the criteria will not need to complete a detailed application form or go through a face-to-face assessment in order to claim personal independence payment (PIP) or to be found to have limited capability for work-related activity (LCWRA) for employment and support allowance (ESA0 or universal credit (UC).

The introduction of a Severe Disability Group was first consulted on in the Health and Disability green paper in 2021.

The resulting Health and Disability white paper published in 2023 revealed that design and testing of the Severe Disability Group had already begun.

The DWP have now announced that they are widening the testing of the Severe Disability Group, with two separate tests taking place, both relating to PIP.  There is more on this below.

How the Severe Disability Group works

Where a claimant is considered likely to meet the criteria for the Severe Disability Group, a short form will be sent to their specialist clinician.  The form is similar to the SR1/DS1500 form used for claimants who are terminally ill.

You can download a copy of the SR1 form from the response to this freedom of information request.

If the specialist confirms that the claimant meets the criteria, they will not be required to attend an assessment and will no longer be required to fill in complex forms, such as the PIP ‘How your disability affects you’ form or the ESA50/UC50.

Testing the criteria

The DWP are currently running two tests of the draft Severe Disability Group criteria

One test involves asking a selected group of clinicians to identify patients they believe are suitable.

The other test involves the DWP contacting claimants they consider to be likely to meet the criteria and asking if they would be willing to take part.  If they are, the DWP will then contact their clinician and ask them to complete a brief form. 

The DWP have said that participation is entirely voluntary, claimants can withdraw at any time and they “will not be financially disadvantaged by taking part.”

Official criteria

In order to meet the Severe Disability Group criteria, the DWP say claimants must :

have an irreversible or progressive condition, confirmed or managed by a secondary care specialist, with no realistic prospect of improvement 

have had no significant response to treatment, or treatment will not improve function, or no further treatment is planned

have a severe impairment of physical or mental function (or likely to develop this within 6 months) such that they need assistance from another person to complete two or more activities of daily living

The Secretary of State is satisfied that, for the individual patient the criteria have been fulfilled for: 
enhanced Personal Independence Payment (PIP) daily living or mobility components
functional limited capacity for work-related activity (LCWRA) or support group

Our interpretation

There is no published official guidance on how to interpret these criteria. So, please be aware that the definitions below are our understanding of the criteria, they are not official definitions.

An irreversible condition is one that may not deteriorate further but will also not improve, such as a learning disability, ADHD, spinal cord injury or cerebral palsy.

A progressive condition is one that is known to deteriorate, such as osteoarthritis, Parkinson’s disease, COPD or Alzheimer’s disease.  

A secondary care specialist is someone who is not in the first line of treatment.  So, a GP or mental health nurse would not be included, but a cardiologist or a psychiatrist would be.  It appears that you don’t need to be currently seeing a specialist, but you need to at least have had your condition confirmed by a specialist.

There is no planned treatment that will improve your condition further.

Your condition needs to affect two or more activities of daily living to the extent that you need assistance from another person.  These activities aren’t defined, but the list of PIP daily living activities would seem to be a likely place to start.

For PIP, you need to be able to meet the threshold for an enhanced award of the PIP daily living or mobility component.  If you don’t already get an award, you can check the criteria using the Benefits and Work PIP test.

For UC or ESA, you need to meet the criteria for being in the LCWRA group or the support group.  If you don’t currently get either of these benefits you can our UC WCA test for LCWRA or use our ESA test for the support group.

Would you qualify?

The DWP say they worked with specialist health professionals to develop the criteria and also consulted with several charities.

But, as always, they don’t seem to have talked to any of the claimants who will be on the receiving end of this system.

So, we’d like to hear your opinions and queries about the criteria in the comments section below. 

And, if you currently get at least one component of PIP at the enhanced rate or you are in the LCWRA group for UC or the support group for ESA, do you think you would meet these criteria and be eligible for the Severe Disability Group?  Or is there something about your condition, your contact with health professionals or something else that you think would threaten your chances?

You can read the full Severe Disability Group test: information for clinicians  Please note: considerably more details about the Severe Disability Group criteria were added to the DWP web page on 27 February.

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  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I receive enhanced pip for both mobility and daily living, I also am in the UC lcwra.
    I have agoraphobia, emotionally unstable personality disorder, depression and anxiety. I went through a lot of sexual, mental and physical abuse from a baby up until I was 18. This is what has given me my personality disorder.

    I have 2 mental health nurses currently. I was sectioned in 2016 when I was diagnosed officially. I have seen a psychiatrist in the past. During COVID I was given 1 telephone appointment. 

    I was attacked by an illegal immigrant when I was 16 in a very bad way. So that's given me a fear of men, especially hearing a different accent. It may seem odd to some people but the trauma that has caused me is immense!! 

    That gave me the agoraphobia, I'm terrified to go out. If I have no choice then my husband has to be with me. I haven't gone out alone since I was 16, I'm 42 now. I didn't even manage to get to my nans funeral! I've been with my husband for 21 years now, he was a family friend that popped to my home and we clicked. In those 21 years, each year I would say I've gone out maybe 7 times. Never alone, always with him. I even have my curtains and blinds closed all the time because I'm scared of being seen.

    This news is scaring me. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I think they haven’t thought about a group who meet the criteria but don’t have any involvement with one of the specialists able to confirm there condition and the fact it won’t change
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Gail I agree with you Gail. My partner is paraplegic with Rheumatoid arthritis in his hands arms and shoulders, is being monitored for cancer after having had a radical prostatectomy but is no longer having any contact with any of the specialists.
      When he was moved from DLA to PIP he had to get his MP involved as PIP declared that he was not eligible for any payments!
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I was in receipt of enhanced benefit for more than ten years after a life threatening operation linked to my incurable autoimmune condition. Subsequent to this I developed several other autoimmune diseases and had a partner to help me. My partner became mentally I’ll and abusive and I was advised to leave them for the sake of my own health. As soon as my award was due for reassessment both parry’s were reduced to standard even though I had help coming into my home. In order for me to reach my medical appointments at hospitals in Liverpool and Manchester I needed my car and only by a visit to my GP a year earlier for my memory loss was I awarded it on mandatory reconsideration. My condition has worsened but I am too weary to fight the DWP for enhanced daily living component. I very much doubt, even with my condition and Professor’s recommendation , that I would be awarded it as was told I could get my medication to my mouth! 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I work as If based on this criteria alone  a medical housing advisor and also am disables. The criteria put a lot of emphasis on the secondary care doctor. One of the problems I continually face is that doctors describe physical signs such as peripheral neuropathy without looking at functional capability. Using peripheral neuropathy as an example it can be anything from a sensory change with very little effect on mobility or severe with foot from and instability due to be unable to judge position (proprioception). My experience of secondary acre is that they are increasingly using the phone as a means of consultation and then very directed towards treatment and response rather than functional capability and the need for assistance. Either doctors will have to base their decision on the illness suffered from or carry out a more detailed examination/interview. Asking a doctor to be the arbiter if a claimant receives a raft of benefits may seriously harm the patient-doctor relationship if the benefit is refused on their evidence. Based on the parlous state of the NHS and in particular lack of continuity of care I have my severe reservations
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    These days a lot of people are not kept on with secondary care specialists due to capacity and funding issues within the nhs. Once these patients have a treatment plan and are stable they are discharged back to gp care, only to be referred back in certain circumstances. 
    My son has adhd asd dyspraxia hypermobility ocd tenancies doesn't sleep anxiety, no longer under the specialists and no longer able to improve he's 17. In our area the waiting lists are never ending, once diagnosed with these conditions you get discharged with no support but the gp but he can't adjust meds. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have lifelong severe mental health problems ( Complex PTSD). I live in Cornwall and despite having had several emergency phone calls from the mental health team ( without any follow up with a psychiatrist appointment) I do not have a Psychiatrist.  

    In the past 18 years I have managed to get an appointment on about 6 occasions. The last time was before COVID when a new Psychiatrist saw me (my 4th in 3 years due to staffing issues and she was leaving for Canada the next day!) I was referred for therapy which has never materialised. 

    It's almost as difficult to get a GP appointment. 

    I just wonder how many others are in the same situation i.e. with no psychiatric back up and simply hanging on by a thread?
    • Thank you for your comment. Comments are moderated before being published.
      · 7 months ago
      @Sophie Hannen Me, exactly the same as yourself,  it's like reading something I've written myself 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Sophie Hannen Sophie, My situation is exactly the same as yours. I was diagnosed with c-PTSD in 2010 and the initial help was very good, but I haven't seen a psychiatrist for over 7 years. I have had all the types of therapy available, but these only last for a limited time because of the pressure on the services. Keep pressurising for the therapy you were promised - getting on the waiting list is so important; I waited 3 years for a year long therapy, but it DID help when it finally came.  
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    This as always sounds like another lot of complex  rules which reads at first like it is an admission finally that a lot of people are too disabled to be able to do a job. They aren't going to get better only remain static or slowly decline as they age.
    I see a real problem with this as to make that decision the opinion of your first line of care your Gp or Mental therapist which carried enough importance to qualify you before can now potentially be over superseded by the opinion of a consultant or specialist.
    It feels like the DWP are giving themselves another opportunity to fail you again. Afterall they could use an adverse opinion from a Specialist to over rule a GPS opinion. Given their eagerness to end claims these developments will no doubt only be used if it benefits them to.


     

  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    My adult son would probably qualify. He is autistic (diagnosed by specialist aged 2 1/2), and has severe learning difficulties and challenging behaviour.   He has enhanced PIP and ESA. He has specialist residential care currently with Continuing Care funding. This provides on going active specialist care by a non NHS Psychiatrist as part of the care package. The Psychiatrist would likely complete a form but we might have to pay his fee ourselves. But our son’s situation is not typical of course!  I agree with others that there are two major flaws. 1. Many people with long term unchanging but disabling conditions no longer regularly see a secondary care clinician but have been discharged back to the GP and the hospital record likely archived. 2. It is entirely unrealistic to expect an NHS hospital doctor to fill in a DWP form when she/he is overwhelmed by his/her clinical work of actually looking after the patient’s health. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Just wondering how people with learning difficulties will apply for this. They don’t necessarily see a “secondary clinician “

  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have severe ME/CFS, I am in the ESA support group and was awarded PIP enhanced on both with no review date (ie. 10 years 'light touch' review). I would not meet this criteria because there are no NHS secondary care specialists/consultants for ME/CFS.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I would like to know how this can work, if you had a back operation 20 yes ago pain clinic discharged me as can't do nothing else and all my care is from my Gp no cure for my back chronic pain. Getting enhanced rate care mobility and esa support group
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I getting enhanced PIP Living and mobility and support ESA.

    I definitely should be in that group.. i have specialist letter  from over 10 years ago saying total permanent disability and have PA/Carers.

    I don't know if i would qualify as my GP is my support as there is nothing the specialist clinics can offer or do for me.  So I hope they make provision for those of us the NHS cant or dont provide ongoing specialist help to. 

    I also wonder if this is what happened to me for my PIP renewal a few yeas back.  I knew it was due i was waiting for the form but i juts got a letter saying something like 'ongoing award' phoned them and they said they'd looked at my file from past claims, sent for to GP and renewed my PIP.  Didn't really understand but very grateful to not have the awful forms to do.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have COPD and it’s getting worse. I also suffer with anxiety and depression and have had panic attacks which are getting worse. Epilepsy and have had 3 fits in 3 days 
    I wonder if I would qualify?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    My adult son has Down Syndrome and Autism and would qualify under these criteria - as long as the person processing the form knows that Down Syndrome can’t be cured (as I have so often been asked in the past)…

    It is dependent on the person or computer processing the form having a depth of knowledge about numerous conditions.  I would welcome a system that would simplify and save me having to repeatedly prove my son’s conditions and disability.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I suffer from a serious disease, with numerous severe symptoms,
    which are exacerbated by physical or mental exertion, to a very severe state.
    (Bedbound, cannot raise an arm, extreme weakness, all symptoms occuring concurrently)
    One of those symptoms is chronic exhaustion, which is common for people with my illness.
    I fit the majority of the diagnostic criteria for having ME, (as do 50% of long covid patients,
    and a number of other patients with other diseases)
    ME was originally diagnosed by Dr Alfred Ramsay, after many doctors and nurses became
    incapacitated with the illness at the Royal Free hospital.
    Some time later, the pyshciatric profession attempted to claim the disease, and stated that the royal free
    incident was 'mass hysteria' (without seeing a single patient) resulting in years of massive ignorance amongst the
    general medical profession, causing mass suffering of every patient thereafter, being innacurately told that
    the symptoms of their disease were due to a pyschological causation.
    In effect, torture.

    In 2011 the pyschiatric profession made what many would now argue, were fraudulent claims about the efficacy
    of GET, exercise therapies, having a curative effect.
    When in fact it made the symptoms of the majority of people worse.

    It is only due to the diligence of the medical doctors who treat patients with diseases like mine own, that
    in 2021, the ME association produced the 2021 NICE guidelines, which state that ME has a physiological causation
    and that the (despicable IMO) pyschiatric profession have no business at all treating any patient with those symptoms.
    The overwhelming majority of patients with my symptoms would agree with this.

    But many clinics, run by individuals with their own fiefdoms, still ignore it.

    I cannot begin to describe the absolute hell I have been through, over the last 14 years, knowing that the only
    'secondary' help available to me, would have involved being made worse, by being forced onto a GET programme.
    (There is a rebound effect, whereby, a person with an exercise intolerance, is being forced to accept exercise
    therapies, resulting in a very servere relapse.)

    So I have statyed away. This contributed to a delayed diagnosis of incapacitation.
    (The majority of patients with my illness have a delayed diagnosis)

    I have until now avoided, suing the NHS, BUPA, and others who have been party to this truly horrific mismanagement
    simply because my medical doctors are decent people, and I know if they could have given me a pill which would have
    cured me then they would have done so.
    But I have incurred six figures in losses, over the last decade.
    I had decided, I would just try and exist with the little I get from the support group of ESA, and just swallow the 14 years of
    hell Ive had to put up with.
    However, Ive had enough now and If the DWP keep trying to squeeze me, I will Sue every doctor, the NHS and BUPA, I have seen.
    Regardless of whether i like them or not. And I am pretty damn sure I would win.
    In my case, it was absolutely neccesary to see a specialist in the disease, and no other is qualified to assess me.
    Certainly not a 'secondary' person intent on keeping up 'jobs for the boys'
    I cannot begin to describe the absolute hell I have been through due to medical ignorance.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Never showed my last comment so will say it again I won’t qualify with Aspergers syndrome that only counts as low level autism so guess I will have the “work coach then” 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Very interesting, I do think I am already in that category due to my housing benefit information which I recieve once a year. I live in Scotland. 
    What interests me is the fact that I don't have to be under a consultant if a specialist has confirmed my mental/health condition and meets the criteria. I had a phone call assessment approx 4yrs ago and was told that I couldn't get extra help because I wasn't under a consultant. This was before Scotland took over descions for disability payment. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    The failure here is getting to see the specialists care I haven't seen one in 4 years and just a 5 minute call last year they're overwhelmed with cases do you honestly think anyone can just get them to fill out a form that could be done with previous doctors ESA 50 etc no improvement long term means exactly that life long. The real reason is to stop paying people that's the truth. 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Nanny C Fill out the usual repetitive forms only to put us in the same place as we were. The only good thing is they have no staff to do assessments so it will take years to even get a form most will be done with the information they currently hold on paper. No improvement in the longer term. 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Jace Same here exactly. I've been waiting 3 years for a review with neurology and another specialist for a rare condition retired years ago, and there is no one to take his place.

      To make matters worse, my GP admits they know next to nothing about autoimmune dysfunction, so I'm just on churned out scripts from my surgery that hospitals originally put in place.
      My GP cannot comment on conditions she has no understanding of. 

      I'm going through a PIP review now, and getting hold of current evidence to forward on is a nightmare.

      From what I can gather, no one will be able to complete this proposed form.
      How are we to go forward when the NHS is in collapse state?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I think I would qualify as I have had Rheumatoid disease for 30 years, diagnosed and treated by a Rheumatologist. I get enhanced daily living and standard mobility PIP. I'm on meds (methotrexate) among others including pain relief for the constant pain, but the meds only slow the progress, there is no cure and I'm not going to get any better only worse and it definitely affects multiple aspects of my daily living activities. 
    I've always thought that those of us with illness that aren't going to get any better, only worse should not have to go through the upset/stress of these reviews and assessments so I think this could potentially be a good idea.  
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Gillian. Gillian,

      The whole idea of causing claimants immense stress is to send us over the edge, hence no benefits, no housing, and ultimately they hope we don't get to pension age.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Gillian. Hi gillian, I totally agree with you, the upset and anxiety,  seeing my daily life and conditions written down in black and white has a profound effect on my mental health for a while and then the thoughts of the false narrative running around in my head,  totally bring me down. I have always felt as if I need to prove my conditions to them
      A total nightmare resulting in not challenging their decision and knowing I fit the criteria for the upper rate.


  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    My husband has a brain injury from an accident and would qualify under these conditions. He no longer gets support from a health professional, neuropsychologist and they have now retired. Luckily we already have something written on a previous PIP application which confirms his condition won’t get better. Getting evidence from a professional, although more work for them would certainly reduce the strain caused by assessments, appeals and tribunals of which we have had all of these for different benefits.

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