Benefits and Work has started receiving emails from readers concerned that disability benefits including PIP, DLA and AA are about to be means-tested.

Although there have been rumours about this for several weeks, the issue gained further prominence due to a question put by shadow DWP secretary of state Jonathan Ashworth to the current DWP secretary of state, Mel Stride on Monday.

Ashworth asked “Can he give a categorical assurance that in the Autumn statement he will rule out means-testing personal independence payment, carers allowance attendance allowance and disability living allowance for children.”

Stride’s response was to avoid answering the question: “The right honourable gentleman is inviting me to break with what has been a very, very long-standing and quite correct convention that when it comes to a major fiscal event, ministers simply do not provide a running commentary as to what may or may not be in that fiscal event.”

In reality that ‘long-standing’ convention was broken as recently as 19 October when Liz Truss told the House at PMQs that the triple lock for pensioners would be maintained.  However, in the same response on Monday, Stride also refused to confirm that the triple lock remained safe under Sunak.

So, at the moment, Benefits and Work can offer no reassurance to readers about what the current administration will or won’t do on 17 November.  All we can suggest is that people don’t assume the worst and instead wait for concrete information.

UPDATE 06/11
Writing about the conservatives budget plans in the Guardian on Sunday, political commentator Andrew Rawnsley quoted a senior Tory as saying “They are flying a lot of kites to see which ones attract most fire.”  

Readers who have strong feelings about the possibility of disability benefits being means-tested might want to contact their MP as a matter of urgency - especially if they are a conservative - to make sure that they are aware that this is a kite which is likely to attract a great deal of fire.

If you do email your MP, please considering posting a comment below and letting us know what you told them. It may encourage other readers to do the same.

UPDATE 15/11
A DWP minister has now said that PIP and DLA will not be means-tested

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  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    I have emailed my MP and said this is not ok (but much more eloquently than that) and asked for his view. He's a Tory - safe seat - I'll let you know 
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    · 2 years ago
    Dont discriminate us disabled people 
    We have health issues show us respect 
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    · 2 years ago
    I sent an email to my conservative MP. Guess that’s all I can do
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    · 2 years ago
    I emailed in respect of living with the cost of Disability and the invalid support I require to function. You should not be penalised for finding a job you can do with your disability or it will not be viable to work and thus would inevitably claim more benefits. 
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    · 2 years ago
    As someone who had no choice but to stop working, I would be very surprised if the Tory's bring this in , it would be political suicide , labour need to sort there house out and be a credible alternative to this shower , but as I say it would be complete stupidity even from them to implement this , the nation would be up in arms ,,,, 
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    · 2 years ago
    what happened to the disability act 2010 will that still stay people need that money to help them in crisis of living, power outage now this come on let them live some sort of life not all can work, if they do get a job all they get is risk assess been their done that cost too much  
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    I wrote this letter to my(Labour) MP:

    I am very concerned about some of the rumours that disability benefits like PIP, which are intended to help with the increased costs incurred when living with a disability, are going to be means tested. I have been suffering chronic illness for the last 30 years and in receipt of means tested benefits as well as contributory ESA and PIP. My PIP award is until 2031. However

    As I haven’t been able to work for much of my working life I have no other buffers such as a work pension or owning property, so I will be very reliant on my PIP. In 2 years time I will qualify for my State Pension, so if I was forced off PIP I would not be able to reapply once my savings were used up as presumably I would have to apply for AA which doesn’t have the mobility component.

    It does not seem fair that disabled people who are already a vulnerable group, are being made to pay for the government’s wrecklessness.

    I hope you will send a strong message that this is unacceptable.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @IB Thank you for posting this letter. I struggle with brain fog and it will help me write the relevant topics in my letter. 
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    Some historical background. Back in the 40s it was decided that people with disabilities needed some way to be independently mobile regardless of wealth or relying upon other family members for money to pay for them. Let’s face it people don’t choose to be disabled. The famous three wheel car was given to disabled people free of charge without any form of means testing. By the 70s it was found these where just unsafe for the roads. The Labour Gov had the idea of a small car but instead gave an amount of cash each week for the disabled person to spend towards a car or taxi, again without any forms of means testing. DLA then followed, which was again followed by PIP, all based on the persons disability not on their background or wealth. This would be the first time in 80 years that a Gov has choose to decide if a disabled person can have independence based on the household wealth and not on their disability. People should be contacting their MP now and stressing the difficulties loosing PIP will cause, especially if your MP is a Tory. Why are disabled being targeted yet again.
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    It's an absolute disgrace that the government is even considering this. Having a disability is bad enough but taking away this benefit is criminal.i hope the people making these decisions can sleep at night - I certainly can't.
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      · 2 years ago
      @Seels I'm terrified too if this goes through I will not be a burden anymore I can't ask my dear husband of nearly 40 years to give up a part time job he loves and needs so I can keep my benefit he shows me so much love and does so much for me .without this benefit we cannot afford to live .I cannot sleep I don't want to burden my husband with how much I'm terrified but I think he can see I'm worried 
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Hayley Sorry I meant to type Hayley x
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      · 2 years ago
      @Hayley Hadley  I'm so sorry to hear this.  I'm the same.  Stopped eating and gone into a deep depression.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Hayley Me too. I'm terrified. 
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      · 2 years ago
      @scouse I will. It feels like a lifetime to wait. I can’t even eat I’m so worried 
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    My partners dad unfortunately has terminal cancer, so he automatically received pip, they have already means tested it against his pension. So it's definitely coming by the looks of it. 
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      · 2 years ago
      @Jo My father has recently got AA and if it had been means tested I doubt very much that he would have qualified, but he has got it so not sure that it has come in, but wouldn't be surprised if it doesn't come in.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Jo Sorry to hear about your partners dad Jo.

      PIP is not means tested as of now plain an simple.

      Are you sure it's PIP and not ESA which 

      If you are receiving any Income Related ESA, either in part or in whole, then it will affect your ESA.

      Kind Regards.
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    It just doesn't make any sense!  You can't means test a Specific benefit that solely helps with the extra costs of having a disability or health condition, it's just not right or fair!!!
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    Just because someone may have savings it does not mean that they are fit and able to work.  So if this is means tested the benefit should still be awarded if the case is made to support being eligible for that benefit and if no monthly income can come from it owing to the savings element alone they should still be awarded NI contributions to start to build up years for eligibility for state pension.
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    I have a feeling that PIP and Attendance Allowance will become taxable benefits bringing them in line with the state pension.
    This happened before with the move from Invalidity Benefit to Incapacity Benefit.
    It's an easy way for the government to means test these benefits without any new system needed.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @James I am not sure, was only guessing, and hoping, that those who got an indefinite award, born on or before 8 April 1948 would be left alone. But with this government it would seem that nothing can be left to chance. So am preparing myself for the worst.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @cudlip1971 If anyone in Gov had a brain cell working this is indeed the obvious thing to do. If pip becomes taxable the low income claimants who pay no tax will not be affected. The high and super high earners will pay either 20% of it back or upto 40%. Plus no additional level of paperwork just pay the tax. Once you start means testing you hurt everyone and the cost of admission gets out of hand, remember the move from DLA to PIP.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @lesley What would that mean for ongoing awards then?
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      · 2 years ago
      @just
      "Then current claims will be eroded naturally over the course of time or eligibility."
      Like some of older claimants still on Disability Living Allowance.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @cudlip1971 Yes this could well happen but a line has to be drawn in the sand and a date will have to be set if PIP and AA become taxable to protect current claiments awards from being taxed.

      Then current claims will be eroded naturally over the course of time or eligibility.

      1995/Invalidity/Incapacity Benefit should have been ignored for tax purposes when 

      Clients benefit will not be subject to Income Tax if they were in receipt of Invalidity Benefit prior to 13 April 1995.

  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    I'm really in a state with this. I'm bedridden with two different functional neurological diseases and mental health problems as a result. I find it difficult to cope as it is. My wife works but is unable to afford to support me given her own circumstances/set of financial circumstances. She earns between 20,000-25,000 a year. Due to this I have only been able to claimPIP and contribution ESA. If PiP becomes means-tested it will leave me with no individual income to support my disabilities or enough money to clothe and feed myself-let alone help with my disabilities. I'm trying my best to remain optimistic but have told her if this reckless, cruel and idiotic policy comes to pass, then I will kill myself because my independence etc will be gone.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @ethan This is TERRIBLE! Poor Ethan and people like him. But I suspect that's EXACTLY what this government wants- for the working class who dare claim anything to either starve to death/freeze to death, or just kill themselves. Look at the main demographic who died during Covid (and continue to do so!). So if PIP etc DOES suddenly become means tested, DON'T GIVE THE BASTARDS THE SATISFACTION! There needs to be a revolution in this country because the sodding Tories are out of control

    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @ethan Same for us 
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      · 2 years ago
      @ethan I am in similar situation my PIP daily living component was removed pre pandemic meaning my husband cannot claim anything as my carer, if this goes through as we have some savings I will lose all of my PIP and will have around 5,000 to live on my husbands income was destroyed by the lockdowns, so I would be forced to go through our savings for us to live, this is not a way to manage a system, nor would I qualify for any assistance to get work as I only have CB ESA the system is all set sgainst us not for us.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @ethan
      Please do not even consider taking your own life.  It is not worth it.  Don't let "them" win.
      Try to live each day as it comes, please. Thinking of you! :-)
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @ethan  You matter, and you are just as valid as anyone in good health. Your wife would be devastated to lose you I am sure. I am sick and disabled and reliant on my husband to live, and PIP to pay carers. It's an evil thing for politicians to worry us by not giving the guarantee.  
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    My Guess is if they were to do this and it did get through parliament and the House of Lords.(which I doubt)
    They would have to use a Form of Transitional Protection Protecting current claimants who currently have an award.
    So No-one is worse off at the date of legalisation If it was to be passed.
    Also like a post mentioned earlyer they would do it on a sliding scale and at a much higher threshold than the current paltry 6k. 
    Millionaires can claim these benefits which I'm sure most feel is wrong.
    However the threshold has to be much higher as Many people rely on expensive equipment and care needs to survive.

    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @just I am in two minds over this. I don't think those with millions should be claiming it. I also agree there would need to be a much higher threshold than most benefits so people do not suffer. The question is - what would be an acceptable cap?

    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @just Thank you.  This forum is so good, it makes me realise that I am not alone.  Good to read other members responses and comments to these possible benefit changes. Feel less afraid.
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    Excuse my total ignorance, but I do not understand what it would mean.  I am 75 next month.
    I receive pension credit guaranteed, help with the rent of my council flat and help with council tax.
    I am a widow, was a full time carer until my husband died.  Daughter died from suicide some years ago.  My son does not live with me but in another part of the country.  I rely on taxis for shopping and use my DLA for my disability which I have for an "indefinite" period.  Called my dentist, he is no longer seeing NHS patients, cannot find another NHS dentist in my area, so shall have to pay privately to see my dentist.  More expense. I am recovering from abdominal surgery which I had 4 weeks ago. So I need extra help because there is no free  "home from hospital help" any more.  I spent a few days on the telephone checking with my local social services.  Oh, they did give me a raised toilet seat and a bath board.  Suggested to fill out a  "Power of Attorney" form.  That was all the help I got from Social services.   My anxiety has shot through the roof since I read this.  Life is getting so difficult now and spend my days wondering what the hell next?
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Jay
      Dear Jay,
      thank you for your supportive words.  NOT DEAD YET!!!!
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @lesley I really feel for you.
      My partner and I are in a similar position. He's been in hospital nearly 9 months and is going to come home severely disabled. The "social worker" denied us the 6 weeks free care that the neurology discharge team had guaranteed us as part of his discharge package.  I currently work part time - I DID have a few savings until Covid when my employer decided NOT to bother with the furlough scheme so I had to live on my savings for over a year. I have a part time job but when my partner comes home I will need to be his full time carer.  Adult social services have been worse than useless they are not interested in helping at all- honestly, you would think they were spending their own wages! The few times I've spoken to his designated person, she sounds like she's in the middle of a creche. Then she claims she can't hear me on the phone. When I pointed this out - the kiddie noises in the background, she said she's "working from home"!!! Hmmm... sounds like she's being paid to "work" from home whilst running a day care centre!
      No wonder your anxiety has shot through the roof! Some people seem to get everything, but I'm quickly finding out that those of us who don't shout very loudly (mainly because we're too knackered to!) get nothing. The message just seems to be... "Oh shut up and die quietly.."
      Well let's make sure we DON'T!

    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Pj Thank you Pj. Kind of your to reply x
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @lesley Hi. It sounds like you are on a low income. If you are entitled to pension credit, which is means tested, hopefully you will be ok if they did bring this in. X
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    Part of me thinks it wouldn’t be too bad if they put a limit on earnings in the same way they do for child benefit etc so £50k and above and it gets reduced somewhat - maybe on a sliding scale. That seems feasible I know of people claiming who really just do it for a bit of extra cash and a blue badge. However they start means testing those on low income and I’m royally screwed I pay for my social care hours and my taxis etc through my PIP if they reduce my income I’m done. I’d have to become a recluse. So yeah very worrying xx
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Emma While I understand your thinking, any introduction of a sliding scale would incur huge administrative costs above and beyond those of providing PIP and DLA itself.  Every time anyone whose income changes would need to be aware of the various cut-off limits on your suggested sliding scale, and then follow through with an application for a change in an amount awarded.  

      Additionally, for those unaware of the cut-offs on this sliding scale, there would be the threat of sanctions or other penalties for not declaring.  When you look at how impossible it can be to even get through to DWP (as evidenced elsewhere in this fortnight's B&W email), it's easy to see how thousands would fall foul of this.  

      I have ADHD and my planning and organisation (amongst numerous other things) is hopeless - and my life highly stressful and worrisome as a result.  I don't get PIP, but my daughter does, and as her registered carer and named thingy (can't remember the word right now!), I am the one responsible for her payments and any changes to her situation.  I suspect it's unlikely we'd ever meet the threshold of any income limits, as neither of us are able to work - but that misses the point.

      From an economic perspective, as a means for the government raising finances through the introduction of a sliding scale, it would be a non-starter. (It's why child benefit isn't means tested.  Ditto for the winter fuel payments for the elderly.)

      Being disabled, no matter how much you earn, incurs significant additional costs over and above those who are not disabled.  The comparatively small amount of PIP paid out in awards is tiny, relative to the financial gains a non-disabled person of the same ability with no additional costs would have.  

      Very few of us choose to be disabled.  And of those who do claim PIP, I suspect that even fewer do so in order to gain 'a bit of extra cash and a blue badge', though I appreciate (as with every sphere of life) there'll always be one or two who manage to wangle a freebie.  Personally, I'd be looking more at the personal financial 'accountability' of MPs themselves before hammering down on their disabled constituents...  

      Fingers crossed you manage to keep meeting your payments for social care hours and taxi costs.


    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Kevin. Thanks Kevin.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Emma Apply for a free social care needs assessment with your council.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Emma It shouldn't be means tested at all, there's more than enough examples as to why not, and the serious problems it would cause if it was, amongst the comments and replies here.
      And the disabled, the most vulnerable in society, shouldn't be made to pay for the mistakes and corruption of the Tory party. Don't we go through enough already?
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    Would there not have to be a bill passed in parliament first to do this ?
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Jim This is what I'm wondering? Surely it would need new legislation, which would take time. Anybody know? 
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Jim No
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Jim While I am not a supporter of the Tories, but I do not tend to forget that it was Labour who introduced ESA and I wondered when the shadow minister raised this whether or not he was actually trying to scare people. I would think to make a major change like this there would have to be some reform bill brought up and then it would have to go through 3 readings and ping pong in the Lords who would make amendments to it unless the last PIP legislation has somehow given secondary legislation powers to the secretary of state which would then mean it was there to be invoked as secondary powers and that nobody noticed it?  Pardon me if I am ignorant but would not something like this has to go through a legislation process and then be read by the King during a King's speech after it has passed Parliamentary scrutiny?
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    They are boasting about how the Tory's have been able to get people who have disabilities into to work which is positive, however some can only do so many hours and the pip allows them to be independent and remain in work this will not end well.
    • Thank you for your comment. Comments are moderated before being published.
      · 2 years ago
      @Chaz The Tories have not remotely got more disable people into work. If anything, they've constantly made it harder to find work.
      Their claims about helping the disabled find jobs are a complete fabrication.
  • Thank you for your comment. Comments are moderated before being published.
    · 2 years ago
    I think if they do this there'll be an outcry. I lost a part of my body as well and was given a DLA lifetime award  as well as suffering several other illnesses.

    My husband works full time but has to do everything fo me when he gets home, cook etc.He isn't on a fantastic wage so he may be better off just giving up his job if this happens. He can't claim carers allowance either as he works full time.

    Not sure if anyone knows if e.s.a contribution based is being targetted too, hopefully not as I get this too.

    I just hope and pray this doesn't happen and that it's purely just speculation. If it does these poor people may be a further drain on the N'H.S with mental health and allsorts of other physical health problems caused by lack of money to live on a decent diet and to obtain help that they need.

    I hope people can try not to worry about this too much,sometimes what we worry about never happens fingers crossed!

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