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Advice about an MR for Mobility

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3 months 3 weeks ago #293638 by Margaret
Advice about an MR for Mobility was created by Margaret
Hi,
I would like advice about walking speeds and safety when asking for a mandatory reconsideration. I have been awarded standard rate for both daily living (8 points) and mobility (10 points)

I walk very slowly (about 0.55 m/sec) and am unsteady all the time due to damage to my spinal cord, which I provided evidence for (screen shots from a walking app). I am also not safe walking any distance as I fell and broke my ankle within a metre of my chair, and also have a possible broken rib due to a more recent fall on my back within about 3 m of my chair, (I mentioned this at the telephone assessment). I am being referred to hospital for this recent fall. A hospital letter lists my conditions as spinal myelopathy, spondylitis with radiculopathy, cauda equine syndrome, and stenosis. The assessor dismissed the diagnosis of cauda equine made by an A and E doctor. Is it the assessors job to dismiss a diagnosis made by a hospital doctor?

The statement of entitlement completely ignores my very slow walking speed and that I am not safe as I have at least one broken bone possibly a broken rib as well due to frequent falls. They also ignored a hospital letter from a consultant mentioning my difficulty getting out of a chair.
Do they have to take my safety and my speed into consideration? What are considered serious safety issues in terms of mobility? What do they consider a slow walking speed for a 60 to 65 year old?

They say that I can walk more than 20 metres as the assessor decided I can walk to my car parked less than 6 metres from my front door. I repeatedly told the assessor that I didn’t know how long it took or the distance as I hadn’t measured it, but I have measured it since. I don’t really know how to respond to this.

My slow walking speed affects some of my daily living activities so that some of them take much longer than a non disabled person would take, but this has been ignored.

When asking for a mandatory reconsideration do I need to use a special form or can I just write a letter?

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3 months 3 weeks ago #293652 by BIS
Replied by BIS on topic Advice about an MR for Mobility
Hi Margaret

I'm sorry that you have not been awarded what you were hoping for. Have you got a copy of the PA4 - Assessor's report? If you haven't then you should ring the DWP and ask for a copy.

You can fill out a form or write a letter about the Mandatory Reconsideration. If you have a look at the Guide to PIP Appeals. which explains putting in for an MR - and the choices you have benefitsandwork.co.uk/guides-for-claimants/pip (Scroll down the page to find the right guide).

You ask whether an assessor can dismiss a hospital doctor's diagnosis. I would like to say 'no,' but in truth, assessors do it all the time. I suspect that the assessor didn't even know what cauda equine syndrome is (especially as it is rare) —and unless your assessor was a consultant rheumatologist or consultant neurologist (which I'm sure they weren't), they don't have the experience or skills to dismiss what the A&E doctor said.

I have no idea what your expected walking speed is supposed to be and I don't think it's particularly helpful to try and even quote one. From what you've said you have proof from the doctor that you have problems getting out of a chair. That means you have problems from the moment you try and stand. You have unreliable balance issues, you are in pain etc etc You are at a risk of falling and you have proof. So you cannot walk safely, or reliably and the fact that your balance is so unreliable - it's obvious that you will not work as quickly as someone who doesn't have the same condition. Speed for me doesn't come into it, and I wouldn't try and argue that. I think in your MR, you should say that the assessor was unaware of the severity of the symptoms experienced by someone with cauda equine syndrome (which is a rare form of stenosis) along with the other issues and how debilitating this is for you being able to move around your house or venture outside.

Have a look at the Guide and then come back and ask if you have any further questions. You only have one month from the date on the decision letter to get your response in.

BIS

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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3 months 3 weeks ago #293672 by LL26
Replied by LL26 on topic Advice about an MR for Mobility
Hi Margaret,

To add further explanation to what BIS has said.

Here is an extract from a recent post I wrote.

Regulation 4(2A) PIP Regs 2013 provides that all PIP descriptor activities have to be completed
• safely
• repeatedly
• to an acceptable standard
• within a reasonable time
This is the so called 'reliability' criteria - all 4 must apply- if you fail to meet even just one of the four this indicates you can't do that descriptor and may need help, an aid or actually can not do the task
Safely - is there a substantial risk that harm might occur? So, if you have epilepsy, and a fit could occur causing danger then this indicates eg supervision for bathing- it doesn't matter whether the likelihood of the fit is infrequent; clearly a fit in the bath could have very serious consequences. Safety issues could comprise dropping knives, or hot pans/food whilst cooking or eating, but could also include leaving the cooker on, and running the risk of fire etc. Falls indicate safety issues, not hearing traffic coming could indicate the need for supervision if out walking.

Acceptable standard is not defined but kind of means the level of completion expected by others. Leaving large messes whilst cooking, or constantly spilling food off the plate or food probably isn't acceptable. Only being able to hear half the words being said is unlikely to be acceptable. Putting on clothes upside down or back to front with buttons not aligned with the button holes is unlikely to be acceptable.
In addition, significant amounts of pain will also be 'unacceptable".

Reasonable time- this is defined as no more than twice that of non disabled person. If you take too long again this shows a need for an aid or physical help.
Some of these criteria overlap- if you are too slow then this probably isn't acceptable. Leaving slip hazards in kitchen could be both unsafe and unacceptable.
Finally consider repetition, tasks need to be done as many times a day as reasonable. The repetition rate will vary across the descriptors.You might wish to cook 3 times a day. Toilet needs with incontinence might need to be managed 10 or more times per day. With journeys and walking this could be 6 or 7 times per day. Bearing in mind the journey could be by car or public transport, but inevitably will involve at least a few short steps to the car and into the nearby building. It would not be unreasonable for someone to take kids to school, go to supermarket, need to go and get new shoes, walk back to car via card shop. Go home.Write card and go to post box. Pick up the kids. Visit mother in evening. None of these journeys or small amounts of walking would be unreasonable, and perhaps one of two more might be required. Communication could however be required 24/7.

You need to be able to do all the required repeats acceptably safely and within the appropriate time for each descriptor. If you fail to repeat except for a trivial time eg 5 mins of the day you can't communicate you can achieve points in accordance with the level of disability under the relevant descriptor.

A descriptor will be met if you can't achieve any/all of the 4 criteria for the majority of days. This means that if you have a better day every so often, that won't preclude points/award of PIP.

Fatigue could also comprise non acceptable standard. It is easy to consider each descriptor task in isolation. Think about the descriptors holistically.
So...if I asked you, do you cook? - if you told me yes, but only when I don't go walking, and it's not the day I have a bath. This would suggest you can't repeat all the activities across the day. Likewise if fatigue, pain breathlessness increase in blood pressure, etc makes activities too slow, this might indicate a problem with repetition as well as being unacceptable standard, and perhaps not safe.

To answer your specific query.
In terms of mobility, it seems to me that you may have a very strong argument to say that you can not walk at all.

Descriptor 2e says
Can stand and then move more than 1 metre but no more than 20 metres, either aided or unaided.
12 points.

2f says
Cannot, either aided or unaided - (i) stand; or (ii) move more than 1 metre. 12 points

Your post suggests an outright maximum of around 6m. But PIP is not about how far can you actually go. As explained above, safety, repetition etc must be fulfilled. Since you have falls, often within a very short distance of a chair, and struggle to get out of the chair this suggests you might be able to argue 2f it appears that you can not achieve this descriptor safely, in a reasonable time. (You may not do this acceptably or repeatedly either - but you only need to fail one criteria to fulfil the 'can not' in the descriptor.

I doubt very much that the walking speed you describe will allow you to conduct any walking within a reasonable time either.

I suggest that you write a letter with a paragraph or two setting out your health issues, and background to these eg if you had an accident, when this happened etc. Detail any surgery.
Then write a paragraph about flaws in the report.
Get a scrap of paper first and list the major issues with the report. Formulate these into 4 or 5 bullet points and give examples. Write these in the letter.
You can then go through each descriptor and if you agree with the points says so. Or, if not explain at what level can you perform activity within each descriptor set. (Bear in mind the 4 criteria.) Give examples. You can have a more specific critism of the assessment report here. Also explain why DWP is wrong.
Include and refer to any medical evidence, send more in if you have this.
You haven't mentioned if this is a first claim, (or move from DLA,) or renewal. If either of the latter then thus us a supersession case and DWP would have to show an actual change if circumstances has occurred.
Finally, and crucially very important. Given that you maybe nearing pension age, if you do not send in an MR letter now you will not be able to attain enhanced rate mobility, as you can't 'upgrade' your mobility award after state pension age, unless you are awaiting the outcome of MR/tribunal appeal already started. You can always upgrade standard daily living if your health deteriorates sufficiently.
Whilst you specifically mention about mobility, you may also wish to consider whether you should have been awarded enhanced daily living rate too. Pain, slow speed, safety etc apply equally to daily living tasks.

Your MR letter should be sent within 1 month if the decision letter. However, time can be extended if you have reasonable cause and can show this. I'll health, family crisis etc could all comprise such reasonable excuse.
Make sure all pages have your name and NI number clearly marked.

I hope this helps.
Good luck.
LL26

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3 months 3 weeks ago #293674 by Kit
Replied by Kit on topic Advice about an MR for Mobility
Hi Margaret I’m sorry you are having difficulties with your health and with the PIP application. Re the Cauda equina syndrome I used to work in radiation therapy and sadly we saw a lot of these from cancer that had spread and they often caused lower limb paralysis and bowel and bladder problems. They are more commonly caused by a herniated disc infections or inflammation. They are generally a medical emergency and require high dose steroid injections and or oral steroids often some times a local anaesthetic is injected at the same time. If the paralysis and bladder urinary retention is progressing then emergency surgery will be performed to allow for the swelling in the nerves To go down. If not treated quickly then permanent damage is caused. Perhaps the assessor discounted the diagnosis as it wasn’t a firm diagnosis? As it was made in A&E . If you are having active treatment for it and being assessed regularly to check for worsening symptoms then clearly they shouldn’t dismiss this as it’s a really serious condition.

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3 months 3 weeks ago #293683 by Margaret
Replied by Margaret on topic Advice about an MR for Mobility
Thank you to BIS and LL26 for your very helpful replies. I am trying to work through the information and I will probably have further questions. This is my first claim for PIP. I do have a copy of the assessors report.

I have been given a 4week extension to ask for an MR as I made a fuss about the length of time it took for the statement of entitlement to come through to me from the date on the letter. They acknowledged that they knew of postal delays.

I have another question concerning the food preparation question. They say that as I have no restrictions with my upper limbs that I choose not to prepare food whenever I need to. As I sometimes fall when standing, without warning as leg just gives way, i cannot stand to cook when my legs are exhausted. I have difficulties getting onto a stool of suitable height to enable me to cook and then I would need to lean forward which causes me great pain in my back in the region of my spinal operation. Anything that involves me bending results in me collapsing forward in just a couple of minutes or so. Surely these problems should be recognised as they do restrict my ability to cook? What is the best way to respond to that, please?

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3 months 3 weeks ago - 3 months 3 weeks ago #293686 by BIS
Replied by BIS on topic Advice about an MR for Mobility
Hi Margaret

I despair at the idiocy of some of their assumptions. The way you have described it here is exactly what you should tell them on your MR. I would say something along the lines of "The assessor has said a, b, c, but they have missed several of the key symptoms of my diagnosis, XYZ, which means that I am prone to falling every time I stand etc, etc... I previously explained this on my PIP form.

And yes, these problems do restrict your ability to cook.

BIS

Nothing on this board constitutes legal advice - always consult a professional about specific problems
Last edit: 3 months 3 weeks ago by BIS.

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