In 2023, there were 136,000 PIP claimants with fibromyalgia listed as their main disabling condition. This makes it the fourth most common condition to get an award of PIP for out of over 500 conditions listed by the DWP.

So, if you have fibromyalgia and it affects your daily living activities, such as cooking, washing, dressing or mixing with other people or your ability to get around, you should definitely consider making a claim.

Success rates

The success rate for PIP claims for fibromyalgia is 62%, compared to an overall average of 53%.  So you have a better than average chance of getting an award for fibromyalgia.

Award rates

26.5% of PIP claimants with fibromyalgia, get the enhanced rate of both the daily living and the mobility component. 

Daily living awards
Enhanced daily living 34%

Standard daily living 65%

No daily living 1%

Mobility awards
Enhanced mobility 42%

Standard mobility 33%

No mobility 25%

99% of claimants with fibromyalgia who get an award get the daily living component, compared to 75% who get the mobility component.

Age range

The ages of those currently in receipt of PIP for fibromyalgia are:

  • 16-29 years  4%
  • 30-49 years  35%
  • 50-64 years  48%
  • 65 and over  13%

PIP rates

The rates of PIP from April 2024 are:

Daily Living component
Standard rate: £72.65
Enhanced rate: £108.55

Mobility component
Standard rate: £28.70
Enhanced rate: £75.75

 So, an award of the enhanced rate of PIP for both components means an extra £184.30 a week. 

PIP  is paid on top of almost every other benefit and may lead to an increase in some benefits or entitlement to additional benefits.

The enhanced rate of the mobility component also gives access to the Motability scheme.

Learn more or take the test

You can read more about claiming PIP for fibromyalgia or take our simple online test now to find out if you might be able to make a claim.

PIP test for Fibromyalgia

How you qualify for PIP

This information applies to England, Wales and Northern Ireland – Scotland has a separate system.  You need to be aged at least 18 before you can receive PIP and you need to start your claim before you reach state pension age.

The best way to decide whether you might be eligible for PIP is to look through this list of PIP activities and think about the ways that your condition affects your ability to carry them out.  You are awarded points according to the level of difficulty you have with each of these activities, with sufficient points leading to an award of PIP.

Daily living activities
There are 10 daily living activities:

  • Preparing food
  • Taking nutrition
  • Managing therapy or monitoring a health condition
  • Washing and bathing
  • Managing toilet needs or incontinence
  • Dressing and undressing
  • Communicating verbally
  • Reading and understanding signs, symbols and words
  • Engaging with other people face-to-face
  • Making budgeting decisions

Mobility activities
There are two mobility activities:

  • Planning and following journeys
  • Moving around

Remember that you need to be able to complete the activities

  • to a reasonable standard,
  • safely,
  • repeatedly
  • taking no more than twice as long as it would take a person without a health condition.

Points for fibromyalgia

Below are some examples of the issues that you might have because of fibromyalgia.  Do remember, that if you have other conditions, you can take those into account too.

Because of fibromyalgia related cognitive issues (fibro fog), you may have difficulty following cooking instructions and so not prepare food to an acceptable standard.

You may not have any appetite for food because of stomach pain, bloating or nausea and so need prompting or supervision to eat and drink.

Stiffness in your limbs may mean you are unable to pull clothes over your head or reach down to your feet to dress or undress, even with the use of aids, and so need assistance.

Fibro fog may prevent you from being able to follow timetables or read maps to plan a journey or may mean that you take more than twice as long as someone who does not have fibromyalgia.

There are more examples of how you might score points for fibromyalgia in our PIP test for fibromyalgia.

Benefits and Work members can also download a ten page, ‘PIP for Fibromyalgia Supplementary Guide’ from the PIP guides page with many more examples and detailed case studies, to complement our main guide to claiming PIP.

PIP test for Fibromyalgia

Take the next step 

Claiming PIP isn't easy. And getting the correct award is even harder.

But there are things you can do to greatly increase your chances of getting the right result.

One of them is to use our highly detailed, step-by-step Guide to PIP claims and reviews, which will support you through every stage of the system.

Because filling in the 37 page PIP2 ‘How your disability affects you’ form in as much detail as possible is vital.

It not only means you are giving accurate and consistent evidence from the outset, it also improves your chances of overturning an unfair decision if you have to go to appeal.  

Our guide takes you through the PIP2 form, box-by-box, explaining the kind of information you need to put in each one.

Being fully prepared for an assessment is vital too. Knowing what questions you are likely to be asked and what unspoken assumptions may be made based on your answers, unless you deal with them, can make all the difference.  Our guide will ensure you are as ready as you possibly can be.

And because we’ve been supporting claimants for 20 years and have a community of thousands of members who keep us updated with their experiences, we can make sure you are prepared for any unfair tactics the DWP might employ.

And we have guides to every other part of your PIP claim too, from mandatory reconsideration, to appeal to review.  Plus a forum where you can ask questions, regular news items and more.

So, whether you’ve tried claiming PIP before and been unsuccessful, or you’ve never had any experience of the benefits system, join the Benefits and Work community to give yourself the best possible chance of getting the right award.

Even if you are not ready to subscribe to the site yet, you can download our guide to ‘The First Steps To PIP Success’ for free and also join the 120,000 people who subscribe to our free fortnightly newsletter.

Finally, if you have claimed PIP for Fibromyalgia, please share your experience - good or bad - with readers in the comments section below.

PIP test for Fibromyalgia

Comments

Write comments...
or post as a guest
People in conversation:
Loading comment... The comment will be refreshed after 00:00.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I have fibromyalgia, me/cfs, chronic migraine, oesteoarthritis in hands, ibs, anxiety and other conditions and was given 0 points by PIP assessor.  I appealed but still got 0 points, I couldn’t take it to the tribunal as my anxiety was too bad.
    • Thank you for your comment. Comments are moderated before being published.
      · 7 months ago
      @Sandra This has just happened to me! It's an absolute joke. I'm also being diagnosed for PTSD but until I get a full physiological report, I get no help whatsoever.  
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I tried and failed on several attempts claim PIP for Fibromyalgia, even went to court, which was awful experience made me like I was lying, belittled me, cross examined me,making me feel like a criminal, I gave up in end, until a friend persuaded me to do one more attempt,  which was successful,  years later.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    hi everybody, I am in the process of having my pip award reviewed ,the form is a review form it does not seem as in depth as the initial form but i am worried how i should proceed with it. It really is stressing me out could anyone advise me on how much information i should submit please? 
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Mrs B thank you so much for your advice, think it might be too late to send for my previous application as i'm already in my extended time to complete it,i keep picking it up and then putting it down i am feeling so down at the moment with it all!!!!! 
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Bugsy1943 It may help you to call DWP and ask “ could you send me a copy of my previous application or review so i can compare accurately to see if anything has changed.” They are usually happy to do this. I talk to my device to type up my answers, including the heading and page number for each heading. 
      Include your name and NI number on every page, also copy and send in all the evidence letters from before plus any new ones. That way it will help you when filling further ones in as it’s already typed up, and you can also give a copy to your GP, so they know how it affects you on a daily basis if DWP write to them. Plus this can help your GP better support you. 
      If questions included on previous forms are no longer on the new form, I would still add all that information in on another page. 
      I hope this helps.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I first successfully claimed PIP in 2018 after attending a face-to-face assessment, but they only give me basic daily living.  I do also have arthritis and degenerative disc disease so I am not sure how much of the award is based on my fibromyalgia, which I have had for 14 years.  I could not face the stress of appealing even though I am in pain before I even commence walking and feel that I am entitled to the mobility element.  I successfully renewed in 2021 and have just completed the forms for my next renewal early in 2024; fingers crossed this will be successful.  As others have said, when that brown envelope comes through the letterbox the stress commences and it is hard work completing them.  I have to just do a little each day, when my health allows, until it is finished but the B&W website is so helpful with this.  It makes you realise that you are not the only one going through it.  I do feel that when you have a long term chronic condition and it is fairly obvious that not much is going to change the process should be made simpler, with maybe just an update required from the claimant's GP.  
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Dee I wish I could help you with your form.  I used to say to my clients at the CAB. "It's not what you say in the form, yet how you write it, the words you use, also evidence, I've saved 15 years of evidence and re send it for each review process. Benefits and work have so much advice too and so I would also give clients the B&W address. 
      Don't be afraid to go to appeal, the form is online and takes 10 minutes to fill out. 
      Sending you positive energy for a positive outcome. 💐
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I claim high rate for both care and mobility for both Fibromyalgia and Hyper Mobile Elor Danlos Syndrome.   Both conditions cause chronic pain, which is drastically life altering.
    After completing my 3rd pip review (since 2014 when I initially claimed) I  was once again turned down for high care and mobility. I then placed a Mandatory Reconsideration, again I was turned down.  I have never gone as far as the appeal process, yet this time I decided too.  
    Gathering 35 pieces of medical documents from various Gps, specialists, Psychologists, the pain managment clinc and a cover letter from myself, I placed my appeal.  Two months later I recieved a phone call from the Appeals department, I was told it did not need to go to appeal and that after looking at all the evidence, I would now be entitled to both High care and high mobility.
    The key is gathering evidence, as much as possible. 
    "Please be aware!" At the MR stage I had to go through all the points again over the phone.  This took around an hour. This info was not passed on to the Appeal department which I found odd, almost like it was held back on purpose. 
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I had to go to a tribunal and they passed me with no contest , I was helped by welfare rights and was told I would have enhanced on both parts but when it came through I was only on basic on both , I was so tired of fighting them I just accepted it as I was totally fed up with them , I've had a intermediate claim and passed but with no change in payment. When they asked if anything had changed I told them nothing had yet on the same form informed them I I now had gout and had a stroke . I am so disheartened with the process I just kept telling them nothing changed..
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I have been claiming PIP and previous to that DLA since 2012 for fybromyalgia. The last 2 claims I had to appeal to the courts. The courts overturned the PIPs decision before the court date thankfully.  The first of these occasions I rang the PIP to inform them I had Breast Cancer, they stopped my mobility. I had to fight tooth and nail to survive and get thier decision overturned. The anxiety and stress I have had to endure when dealing with this department was unessesery and painful. I expecting another few years I will face the same problems.  My condition is getting worse not better and its not like I enjoy being like this. They need to stop harassing people with long term chronic conditions. 
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I've technically had Fibro since I was 18 but was only diagnosed in 2018 after my current doctor got me a MRI and rheumatologist. On Pregabalin and Tramadol, doesn't help the pain and when it's delayed I go through Cold Turkey, won't give me anything stronger. Been trying for advanced PIP for 4 years and I was only successful this June and got 2 months back pay after all that trying. I now have carers and an electronic wheelchair through Motobility. Got no points whatsoever for my mental health condition or my fibro fog, everything means i wouldnt get a job even if I got one, im really scared of this governments approach to the disabledJust  apply and keep applying if you fail.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I was diagnosed in 2016 with fibromyalgia, when I was at my pip medical the person carrying out my review made it abundantly clear that she had arthritis in her thumbs and still came to work. Because I was looking clean and spoke properly the lady deemed me fit for work after being previously awarded. I couldn’t keep a job after because of my health and had to use food banks because my esa didn’t cover my bills. Two years later I was told I could apply again. This person told gave me enhanced rate care, but not mobility even though I struggle to walk with the pain, and cannot process information because of the brain fog. It was a very traumatic time for me as my father was going through cancer treatment and I couldn’t manage my health even with help from my brother. As we all know stress makes the pain and symptoms worse. I hope this situation never happens again to anyone 
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I e had fibromyalgia long before it was fashionable, over 30 years now diagnosed 15 years ago and have had DlA and pips high rate for over 10 years. At first it was low rate mobility but as I e aged the pain is worse….how far can you walk without being in pain……..0 steps standing and walking always causes pain and without morphine I would stay in bed all day.  I used to be a social worker I was always called high rate care low rate mobility.  I cannot emphasise enough use the right words, do not be creative use the words they use that is what gets the points “significant” should be in every answer. Thanks for this site I still join every year even though at work it was my secret weapon. I’m 60 and retired due to depression and fybro for 12 years…..previous 15 was trying all sorts of anti depressants before psychiatrist said it’s a reactive depression we have to discover what your body is reacting to. So many symptoms are individual conditions. I have a weight lifting belt and corset which make a massive difference to my ability to stand and move for 30 years I would be leaning against a wall sitting on grass or desk instead of standing to chat.  Getting a diagnosis was amazing for 4 months then the realisation hit am I living with it or is it living with me….whose in charge of this relationship.  I took control learnt spoon theory and do what I want when I want and build in duvet days around activities.  Best buy was a slider walking machine handles to hold onto and no lifting your feet up but 5 minutes every couple of hours having taken pain killers first has kept my fitness and weight under control.   Loose those and you are no longer in control use council for home improvements to have wet room fitted with all singing toilet and to get a worktop height oven fitted…..still can’t get wet washing out or hang it or empty bottom tray of dishwasher but the oven shower non slip flooring hand rails and toilet are a real game changer.   I even have hand holds to rest elbows on while sitting on a stool so I can keep my arms up long enough to rinse my hair
    • Thank you for your comment. Comments are moderated before being published.
      · 10 months ago
      @P Absolutley 
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Jan Fibromyalgia was never ‘fashionable’. Progress in understanding the condition means more diagnoses. It’s precisely this attitude that marginalises and trivialises other people’s suffering. Be better.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Thank you for this, a lot of hard work has been put in.
    I would say it’s essential to get help in completing PIP forms from a professional organisation like DIAL. 
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Thank you so much for this guide, I think it will help people a lot who suffer with fibromyalgia. It is easy to read and follow, it clear, to the point and sitting alongside the main PIP guide it's just more tools in our toolbox!!. 
    Everytime one of those dreaded forms hits the mat the first thing I do is download the up to date guide from here and follow it page by page and have been successful with all my reviews, thank you again for all your hard work and help you give us.