No 4 point PIP descriptors results
| Submission ID: 1165879 |
| Date: 2025-04-10 23:40:49 |
| Nickname: Brinkofsuicide |
| Age: 48 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Neuropathy,Astigmatism,osteoarthritis,degenerative spine disease,Adrenal Insufficiency,,grade4 Chondromalacia patella,Iritable bowel syndrome,Chronic Spinal Pain, C7 and L5 nerve root compression, peripheral artery disease (PAD), ulnar neuropathy and Carpal tunnel syndrome in both hands, |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: I am sure I will not score 4 as I did not in my last one |
| Tasks you struggle with on a day-to-day basis: My key issues are a lot of difficulty with mobility . Although, I have been advised to be using a frame , I use a stick and have several falls . After walking for nearly 5-10 steps, that door with difficulty and pain, I stop and then start again after about from my dining area to the door I lean against the wall , roughly about 5 metres and do it again . I fear going out as I fall although I have a stick. I only leave home for appointments and get shattered rest of the day leaving me No energy to do much as I have adrenal fatigue, this is a long standing issue.One of my other biggest problem is my hand issues and again hand pain arm pain from radiculopathy . I have no good sensation in my hands due to ulnar neuropathy and carpal tunnel and drop things . I have adapted cutlery and as I live on my own no one notices the mess I create . With a lot of difficulty and eating slowly I can independently manage with my aids . I have claw hand and get so much cramping . Again , I do not have help so I have to dress myself getting myself dressed is the hardest but I never give up I try try try and then get trouser , pant . I can never button or handle fine items , so I just wear easily slip on t shirt or Velcro shirt, recommended by an OT. In nee pip 4 point , I will be unable to get as they will say I manage independently . I cannot use tissue paper to wipe bottom . I know it’s not hygienic but I’m Used to using a long handle soft brush I got of eBay and then I wash and reuse . It is a horrible life .i cannot hold liquid soap in hand as it slips away, so I squeeze on body , rub with palm . I’m also in constant pain and cannot sit for long time , i have a bath board , toilet seat and a lot of long handle stuff-back brushes, front brush , curved ones , hair brush etc. I cannot get down due to bad back . I have a lot of tummy problems so I am having to go to toilet all The time and have soiled myself , even outdoors . I also have urge incontinence so when I have to empty Bladder, I must. I have to be very careful as if I have lots of diarrhoea I need emergency shot of steroid due to adrenal issues and constantly drop syringe on the floor as I cannot fine grip it.. I also struggle with reading due to astigmatism and ocular exophoria (problem with eye control) and eyes get easily fatigued . I have a lot and lot and lot of pain everywhere, in my knee ankle back neck arm leg stomach and neuropathy pain wakes me at night some days after I have been out for medical appointment on ring a ride , I have to be in bed with just few apples and nuts munching away due to the pain and excruciating fatigue. Trust me sir, I’m not lazy so please send this to Liz Kendall . Today I’m in so much pain and in bed as I had fall day before yesterday and had to be taken by ambulance . Thankfully I did not break my arm no fracture only muscle tear . I cannot stand from the chair as my knee is very sore and in a wonky ankle. I am with 11 consultants and services and further referrals have been made. From Vascular input to gastroenterology, everything is on a waiting list. I waited 1.5 years to have my ulnar neuropathy surgery surgeon said it was too late , 1.2 years for pain clinic first appointment, it’s been 6 months since being diagnosed with pad they said they will See in month but not a sign . Gastroenterologist 1st appointment was exactly after 18 months . It is agony suffering in silence. I also have a blue badge and sometimes get to use if my son comes for appointments when he is not at work . I have train pass but I’m scared to go without my son as I’m worried I will fall and tie under the train or inside.I think I may have missed more but I’m Getting very tired . Reminds me of the main pip application I completed. Instead of cutting pip and getting this new criteria , they should focus on improving the application and the assessment processes and the nhs waiting lists not cost cuts . I am writing a very lengthy letter that the current consultation (green paper proposal) is fit for nothing and I’m sending it straight to the consultation mailbox. Whether they read or throw away is a different matter! |
| Expected income you will lose if the Green Paper cuts are imposed: I wrote this for my mp to show the effects . My son came and helped me with it : At the heart of the government’s plan is the abolishment of the Work Capability Assessment (WCA), a critical tool that assesses the extent of someone’s disability and eligibility for financial support, such as the Limited Capability for Work and Work-Related Activity (LCWRA). This benefit provides me with nearly £416.19 a month, helping me pay for the mobility aids, continence products, specialist shoes, and other vital items I need to live a dignified life. The government’s new proposals would strip this essential financial safety net away, without consulting disabled people.In addition to abolishing the WCA, the Green Paper proposes to introduce a universal health element in place of the LCWRA. However, this new health element is linked to the Personal Independence Payment (PIP) system, which is already difficult for many people to access. The introduction of a new, stricter PIP criteria — requiring individuals to score at least 4 points on any daily living descriptor — means many people, including myself, could lose out on PIP entirely. This could result in a loss of up to £737.20 a month in addition to the £416.19 lost from the LCWRA, totalling a devastating loss of £1,153.39 per month. This is what I would loose every month and as I have no saving or income , I will Only have to rely on the single universal credit payment which will not even leave me to pay my one bed flat rent of £900 , so nothing for the bills or my equipment, stick , aids, mainly nothing for food . My son would just come one day to find me dead in the flat. Shame on this government.This isn’t just an issue of finances. It’s about dignity, respect, and equality. The government is proposing to eliminate the WCA and change the PIP system without consulting those it will impact most. It’s clear that their intention is to cut costs at the expense of the most vulnerable people in society. This is not a moral or common-sense approach; it is a blatant attempt to push disabled people into deeper poverty.cover pip is used for the cost of mobility aids, continence products, assistive equipment, specialist chairs and mattresses, adaptive clothing, ring a ride and cab transport (since Access to Work is delayed by 8+ months), and other essential aids like voice software, orthotics, glasses, prescription payments adjustable bed/chair and bath/toilet safety items. Losing PIP would mean losing access to services like Blue Badges, discounted rail cards, purpl discount and other lifeline supports. |
| Expected problems if you tried moving into work, with support from a work coach: I used to work but I always fell sick and the falls and loss of balance . There was a lot of discrimination and the reasonable adjustments they gave was merely a chair which was not suitable for me and had to change it several times by the time I went sick had to change again .working from home is very hard for me now as I’m very fatigued all the time , this includes not being able to think sometimes I forget if I took medicine or not . Due to all of this I am very about what the future holds . If they have a work. Environment and a manager who truly understands disability and can know that conditions and pain fluctuates not winging everytime we go to hospital appointment like my previous manager, I am willing to try but I do not think I can do more than 1-2 hours a day which I don’t think anywhere in the world there is a job for that |
| Anything else to tell us: Whatever you are planning to do with these forms , I do not know but let me Tell you one thing as you understand people with disabilities better . I hate the language against disabled people Used by this government, calling us lazy, taking the Mickey , writing in the Green paper proposal that it is a moral and common sense reason that they launched this proposal in very insulting. If possible , I would like to invite them And come and stay with me for one day , that’s it, just one day . Seeing the amount of pain I’m in . The days when I’m Not lazy” but literally I mean literally cannot get out of bed due to fatigue even when I’m hungry. Just because I can slowly use my sensory less hands to function doesn’t mean I can just get to work and perform like Starmer, Kendall or reeves . I am truly sad . How can a government abolish wca , then even raise the bar of pop so that no one can access and moreover close a consultation even before a proposal Is published and run a political theatrical consultation public event stunt calling it consultation. This is totally non inclusive, discriminatory and we need to stop these proposed before it reaches further development. I am very against these benefit cuts for me and all the disabled communities . Thank you for supporting this cause . |
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