No 4 point PIP descriptors results
| Submission ID: 1165590 |
| Date: 2025-04-10 19:55:42 |
| Nickname: Itshopeless |
| Age: 62 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: I worked from 13 to 57 . I worked 150 hours per week until I dropped. Now A number of health issues together make daily living a miserable existence. MCTD ( mixed connective tissue disease) Vasculitis, arthritis, heat sensitivity, Fibromyalgia. Spinal Stenosis , Spondylolitheseis, lymphoedema, incontinence ( both) I waited 3 yrs for a knee replacement and fell 32 times breaking many bones, my wrists are very weak now. I fell down a flight of stairs trying to go upstairs to use the toilet while waiting for a knee replacement. I then had urgent back surgery for spinal decompression . The Surgeon operated on the wrong part of my back. This wasn’t discovered until 8 months later when I was then placed onto another hospital waiting list. My spinal health continued and continues to deteriorate. The pain cannot be controlled . It is excruciating on standing 2-3 mins. The pain causes me to feel nauseous, become dizzy , sweat and feel faint . I can’t stand long enough to make a sandwich. Sitting on a chair doesn’t relieve the pain. Since the failed back op I can only stand for 3 minutes .the pain goes from 8 to 10+ in seconds. My legs give way and the back pain is beyond excruciating on a daily basis. . I only leave home for hospital appointments or GP apts. And hospital ambulance transport collects me and returns me home. I have a compromised immune system due to the medication that I’m prescribed . If I go to out and come into contact with someone with a cold etc I become really ill with minimal contact. I’ve picked up many debilitating viruses and bacterial infections from attending medical appointments. I also am plagued with Insomnia I don’t go to sleep until around 3-4 am due to the pain in my lower legs . I also have rls. Medication helps very little. I take meds for depression and anxiety. I became very depressed due to living alone and being unable to complete simple daily activities. My incontinence is a big problem I’ve had accidents of the worse kind in public places and in my car and the hospital car park I also have severe fatigue. The energy can simply drain from my body leaving me unable to move and sending me to sleep for hours. My memory is also affected due to my conditions and from the side effects of strong medications. I haven’t had a holiday for 18 years as it’s too difficult to do so due to my debilitating health. |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely |
| Tasks you struggle with on a day-to-day basis: Everything is a problem everything Making a sandwich takes 3 attempts I have to rest between buttering the bread and so on. If not I feel nauseous and can’t eat Washing dressing I can’t reach my feet . I feel dizzy if I tilt me head back or forwards to wash my hair Keeping my house and garden tidy reaching for things below or above me I fall Carrying things I drop most things Emptying my bin Walking even with sticks I’m wobbly and not balanced |
| Expected income you will lose if the Green Paper cuts are imposed: The higher rate daily living activity award |
| Expected problems if you tried moving into work, with support from a work coach: I would be ill after a couple of days. It would be too difficult to do simple tasks. I need to elevate my legs as much as I can or the lymphoedema causes them to swell and be even more painful After I visit my GP Fatigue can hit me so badly I sleep for hours and even then aren’t refreshed. I can’t sleep so am groggy and confused with simple tasks like emailing someone . Since becoming ill I often forget to do a task even if it’s on a list in front of me. Recently I’ve been diagnosed with Adult adhd which explains a lot. I have time blindness I forget lists I feel overloaded easily since I became ill due to pain and physical disability I’m not able to complete anything like I did in my professional career. I feel useless and less than I know I would be a burden in the workplace. My memory issue won’t allow me to retain instructions and I have little tech knowledge. A work coach wouldn’t be able to make a race horse out of a cart horse. I have friends who are Work Coaches they agree with me it’s too much and I’d be ill. |
| Anything else to tell us: Many of us worked for many years with various health conditions which were debilitating and refused to give up. We pushed through because it was the right thing to do then we hit a brick wall and cannot and genuinely really cannot do what is expected here. We live in poverty we survive we don’t thrive as it is . These draconian measures will see us ill, clogging up the NHS , social services and other organisations even further either that or we will give up and die in large numbers |
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