No 4 point PIP descriptors results
| Submission ID: 1165205 |
| Date: 2025-04-10 15:56:12 |
| Nickname: MooMooME |
| Age: 40-50 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: ME/CFS Fibromyalgia NF Chronic Pain Severe Migraines IBS Raynauds Allergies to various things. PTSD. |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely |
| Tasks you struggle with on a day-to-day basis: Everything. Every basic element of living is huge issue. Added to my conditions are the light and sound sensitivities (including polymorphic light eruption from the sun) Preparing food and drink…next to impossible. I’m too fatigued, in too much pain. I cannot balance. Even get issues when sat. I lose appetite for days due to nausea, migraines and medication side effects. When I can eat I have to order in as I cannot prep food. I make this last me two to three days. Cannot lift arms, cannot bend (severe hip pain, lower back and shoulders.)cannot wash myself, cannot clean my home. Dizzy, ultra fatigued and exhausted. Always freezing cold. |
| Expected income you will lose if the Green Paper cuts are imposed: I won’t be able to afford to live. It’s already a huge problem-there’s so many extra costs already with chronic illness and disability. |
| Expected problems if you tried moving into work, with support from a work coach: I barely have the energy for basic day to day tasks. I constantly pace and prepare for even a simple medical appointment. There’s no way I can hold down work. I also get migraines that last a minimum of 6 days. |
| Anything else to tell us: There’s next to no treatment for my conditions anyway. We are already left and forgotten and struggle to get assistance, recognition and simply hope for a recovery that doesn’t come… neither does any treatment and they do not exist. The new proposals will make it much more difficult for those of us with chronic pain, fibromyalgia and especially CFS/ME. The fatigue is unrelenting. It is horrendously difficult to even maintain relationships, friendships let alone a five day week working. I’ve had these conditions since my teens. I hate what my life became. I wish I could work. I’ve had to use my pacing and “spoons” just to write this and try and make my opinion and situation known. |
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