No 4 point PIP descriptors results
| Submission ID: 1165070 |
| Date: 2025-04-10 14:47:26 |
| Nickname: Alway in pain |
| Age: 54 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Fibromyalgia Me/Cfs Migraine Neuralgia Asthma |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Haven't before, I should but as we know they are rarely given out especially without a lengthy appeal process which people in my position find extremely difficult to manage |
| Tasks you struggle with on a day-to-day basis: I am always in pain, levels 6/10. Neuralgia goes to 9+ every 2 to 3 weeks flaring my fibromyalgia and ME. I spend days in bed only getting out to go to the toilet. Just doing this can make me vomit due the the extra pain and energy used. During this time my carer brings me water and ice packs regularly as I can't do it for myself. I struggle to eat because I have no appetite due to migraines and side effects of medication. When I do eat my stomach hurts too. I need help making food because I regularly feel dizzy and have vertigo too. Several times I've fainted whilst trying to cook. My carer regularly brings me biscuits, then toast and gradually builds my meals back up. I don't go downstairs much because it is hard to get back up the stairs. I do very few household chores because i have little energy and lifting things triggers the Occipital Neuralgia. Due to pain, fatigue and medication side effects my memory is poor, which makes conversations difficult to follow. Showering/bathing drains energy so only happens on better days. Someone needs to be close by because the hot room makes me feel faint. |
| Expected income you will lose if the Green Paper cuts are imposed: I would lose standard living PIP. My son would also lose his carers allowance. I'm also on UC which I presume I will lose because there is no way I can work. The more I do, the worse my symptoms are. I'm also on contributions ESA which may be ending. I would only be left with PIP mobility. I wouldn't be able to claim housing benefit if I lose UC ( I presume they will sanction me for not applying for jobs and attending job centre) |
| Expected problems if you tried moving into work, with support from a work coach: I couldn't work. I only get out of bed a couple of days a week. I dont know which days that will be. I can't use computers for any length of time- migraines & Neuralgia. I can't use the phone- trouble following conversations. My health would deteriorate further. |
| Anything else to tell us: People reading this may think that on the new PIP forms I will be ok. That I will get a 4, and maybe I will. But there is also a very big chance I won't (at least not before a lengthy appeal process, so no money for months/years) along with 1000s more like me. Please fix the problems first and then more disabled people will naturally get back to work. If the 26billion into the NHS helps surgeries happen then hopefully that will help a lot of people's pain problems. Help people get mental health therapy now, don't cause more problems and expect a positive outcome. |
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