No 4 point PIP descriptors results
| Submission ID: 1164955 |
| Date: 2025-04-10 13:32:28 |
| Nickname: Turrreeee |
| Age: 58 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Osteoarthritis both knees, ankle & neck & signs in wrists too. Pelvic floor damage from medical mesh', pudendal nerve pain, double incontinence, I walk with a stick... & lymphoedema both legs, moderate COPD, active CPTSD, extreme anxiety, global fibromyalgia, sleep issues, reactive depression, multiple urinary infections, vulnerable to viruses & high risk of covid. Struggle to walk far or stand for long & pain very invasive - making food from scratch hard.. cutting food up hard esp veg. wrists bad.. |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely as you need to be bedridden to get it!! |
| Tasks you struggle with on a day-to-day basis: Bending, walking far, lifting much ( shopping mostly delivered), remembering to eat\meds (brain fog from fibromyalgia & pain & lack of good sleep, cleaning floors & changing bed (I'm incontinent & leak but need help with this!), sometimes can't wash hair & wrists bad .. extreme anxiety in cars (2 car accidents), & seeing anyone medical (the CPTSD) .. and pain.. did I say nerve pain? Stops me mixing with people, I must nap every few hours or can't function & I can't breathe outside in hot weather so am stuck at home with expensive air con on. leg gives way when nerve pain hits. This is hard to write I'm so brain foggy now! How could I work? Who's gonna have a bed for me every 4 hours?! My legs are so swollen & heavy from mesh damage they're hard to drag around & I must keep them up most of the day (lymphoedema). |
| Expected income you will lose if the Green Paper cuts are imposed: The lower level I get daily care would be lost.. it pays for my helper who comes at least once a week. I've no way to do these things without her & I could fall trying to bend to clean things as leg gives way when nerve pain hits. Always unexpectedly. I'm not sure what else but am scared. |
| Expected problems if you tried moving into work, with support from a work coach: I'm double incontinent so messy problems.. no access to a shower would be massive.. can't concentrate long & distracted constantly by pain - my talking with friends often interrupted by me saying hang on I'm lost & they have to bring me back.. I forget my own medication so how' am I to remember things in a job? & I squeal when nerve pain hits.. who needs that at work & I'd be mortified to poo myself in company (again). What would I do for naps? (Fibromyalgia fatigue)How can I make myself have a memory when I don't have one that is guaranteed to work? I'm scared of conflict -cptsd- & cry, shake & sweat if anyone's angry nearby (5 violent relationships in my past) .. big problem... Can't be in a car without extreme anxiety. 2 nasty car accidents before. Swollen legs & must keep them up.. at work? How? This form I'm finding harder & harder to focus I think I can't explain properly.. |
| Anything else to tell us: Thanks for doing this... I'm clever but can't put things like this together or keep on it any more with fatigue & pains... We need you so badly |
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