No 4 point PIP descriptors results
| Submission ID: 1164919 |
| Date: 2025-04-10 13:15:05 |
| Nickname: Povertydoesntcurechronicillness |
| Age: 59 |
| Main health condition: Physical health |
| Main conditions that affect daily living: M.E. Endometriosis. Crohn’s disease. Facet joint hypertrophy. Joint pains, back pain, stomach pain. |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Very unlikely unless my health deteriorates further. |
| Tasks you struggle with on a day-to-day basis: Mostly anything that involves effort. I struggle with inability to sit for extended terms, incontinence, making food, washing. Standing in a queue is difficult for me. Driving is in an automatic as stomach pains make manuals impossible. |
| Expected income you will lose if the Green Paper cuts are imposed: I would lose £3500 approx pa. If this happens I couldn’t afford my mortgage so I will be homeless. I don’t spend PIP on mortgage but it covers my higher electric bill(i feel cold badly), transport to lots of medical appointments, charging wheelchair, home shopping delivery, continence products, etc. but I am already struggling to pay extortionate fuel costs. I am also a carer for my Mum. I am offended that the government thinks I am such a burden. My contributions to society are considerable, in terms of saving the NHS and social care costs for my 84 year old Mum. |
| Expected problems if you tried moving into work, with support from a work coach: I can’t sit up for more than an hour without considerable distress. Some days I am stuck on the toilet. My pain levels are really high so I take heavy meds so my memory and concentration is poor. Back pain starts within a few minutes of any activity. I am technically on long term sick from my employer. I am NOT UNEMPLOYED. I repeatedly tried returning to work 12 years or so ago. I could not maintain attendance. I became withdrawn and distressed being let down by my own body. Now I’m on 5 waiting lists! Colorectal surgeon- up to 2 years to see. Iron infusion-timeframe not known. Orthopaedic dept- up to a year. Contrast CT scan -around a month, to determine if Crohn’s has spread. Pain clinic - 9 months. These excessive delays in treatment mean I live in high levels of pain. So I take dihydrocodeine, diazepam, sativex or medicinal cannabis. I cannot drive on these meds. I must come off them for 24 hours before i drive so I am in agony and just don’t sleep if I have to drive to a medical appointment. I have become hermit-like because of this. I loved my job. I would return to it tomorrow if I could. I have 5 professional accreditations. I must abide by standards of professionalism and integrity for these institutes. I have mentored employees before myself so I know how to look constructively at abilities. But some of us simply CANNOT WORK. I am not difficult or obstructive. I’m chronically ill. |
| Anything else to tell us: Yes. Poverty does not heal chronic illness or disability. Less money means homelessness, hunger and cold. Make your savings elsewhere. These proposals to remove money from people who need it to live with their illness/disability are inhumane, illegal and cruel. |
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