No 4 point PIP descriptors results
| Submission ID: 1164875 |
| Date: 2025-04-10 12:43:30 |
| Nickname: |
| Age: 31 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Diabetes, hypertension, obstructive sleep apnea, hidradenitis suppertiva, atonic bladder, inappropriate sinus tachycardia, peripheral neuropathy, nerve damage to right hand due to sepsis, autism, scoliosis, CPTSD, chronic migraines, mobility impairment |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely as nothing has gotten worse and we supplied so much in-depth medical evidence |
| Tasks you struggle with on a day-to-day basis: I require help with nearly every daily living activity and score 3 points on most of them. I have personal care support every morning to shower and dress. because I am a fall/faint risk, I must be supervised in the shower, I need help to wash my lower body, feet and back but am able to wash my front and hair. I have an adapted wetroom with grab bars and a shower seat. I am not always well enough to shower and then my carers will help me with a strip wash. I need help to dry myself or I get bad infections. I have a surgical suprapubic catheter because I have complete retention and cannot pee. It frequently disconnects into my clothing and bedding and I need help to change these. I cannot cook or prepare food unsupervised because I have nerve damage and cannot feel the difference between hot and cold. I am a full time wheelchair user. I have a fall alarm I have to pay for to stay independent. |
| Expected income you will lose if the Green Paper cuts are imposed: I would lose the enhanced care element of pip which is about £480 a month. I would lose the health element of universal credit which is about £424 a month. In total I would lose £904 every month and be expected to work. I wouldn't be able to afford my life alert which costs £250 a year. I wouldn't be able to afford my higher energy bills so I wouldn't be able to charge my powerchair. My gas and electric bills are around £150 every month due to all the medical equipment I need to survive. I wouldn't be able to wash my clothing and bedding every time I accidentally disconnect my catheter. I wouldn't be able to buy over the counter painkillers, antihistamines and dressings because these are not covered by the NHS. I wouldn't be able to afford to pay towards my social care package which would mean I would have a lot less support. |
| Expected problems if you tried moving into work, with support from a work coach: I am a full time power wheelchair user and cannot travel independently as public transport is inaccessible to me. Most places I go, I cannot access toilets which means I can only leave my home for a few hours because I will have a toileting accident due to lack of bathroom access but I would be a lot less likely to have an accident at home. If I tried to work from home, I cannot stare at screens for too long or it triggers a migraine. I barely have enough energy to get through my daily living tasks safely so my health would really suffer. I have to go through painful procedures every 4 weeks which takes me out of action for at least 48 hours and some times up to 2 weeks. I often need district nurses to come out in the middle of the night to help me manage my catheter as it blocks regularly and I get many infections. All of my mornings are occupied by personal care and physiotherapy, even though I only get one hour, that hour can be anytime between 07:30 and 11:30 depending on the weekly agency rota. They cannot promise a specific time due to chronic understaffing but at least they come every single day which is a lot more regular than many people in my position get. |
| Anything else to tell us: |
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