No 4 point PIP descriptors results
| Submission ID: 1164867 |
| Date: 2025-04-10 12:37:38 |
| Nickname: heligany |
| Age: 55 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: atopic eczema, UV sensitivity, asthma, recurring anaemia, fatigue, agoraphobia, fear of people, missing fingers, reflux. |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: unlikely |
| Tasks you struggle with on a day-to-day basis: I have difficulty preparing food when my skin is in flare. I cant protect my skin with gloves because of missing fingers (bespoke gloves are not available through NHS OT etc). My skin reacts to raw vegetables such as onions and potatoes. Once in flare my skin blisters and cracks making it hard to hold things without pain, especially heavy things like saucepans. I have had to stop trying to cook from scratch and eat sandwiches or ready prepared food in easy to open packaging (sometimes my skin is too bad to allow the use of utensils). Not being able to cook combined with heavy periods has lead to recurring bouts of severe anaemia. The is a life threatening condition. I have been offered iron infusions but these come at a greater risk if you have atopic conditions (like the atopic eczema). I struggle to find iron supplements my stomach can handle and Im now at the stage of reflux vomitting them. Its a cycle of anaemia and reflux as I try to balance these two issues. I striggle with keeping my house clean and washing myself due to these tasks increasing the chance setting off my skin. Dressing myself is also an issue when my skin is in flare. The medications Ive been given to address the skin flaring tend to be ones that arent recommended you are on for long. the creams thin the skin and can cause other issues such as increased UV senstivity. The tablets make me extremely tired and you arent allowed to operate heavy machinery or drive if affected like that by them; they also make me suicidal. I tend to only use the tablets when my skin is so bad its preventing me from sleeping. My doctors wont put the steriod creams on my repeat prescription list because they like to be in control ofthem, due to risks attached to overuse, I do not wish to use them due to risks either; both my me and GP see avoiding triggers the only solution. When my skin became UV sensitive about ten years ago I had to stop going outside (March- Oct) as as little as ten minutes outside caused my face to flare. I tried to find sunscreens that would protect me but instead found a lot more allergies to preservatives etc. This lead to agoraphobia and that lead to fear of people. I then developed issues using the telephone and Im now starting to have issues with email as well. The anaemia is probably making the mental health issues worse as being so tired does affect my ability to cope. Dizziness and lack of energy is also impacting my ability to look after myself. My house is getting more and more untidy and Im just not coping at all anymore. Even when Im getting the anaemia under control Im not seeing my energy levels return to normal, Im just staying knackered inbetween bouts of anaemia. |
| Expected income you will lose if the Green Paper cuts are imposed: I expect to be told I no longer fit the definition of disabled and I must go and look for work. I will lose LCWRA (£423.27) and ADP (£72.65) and probably be sanctioned as well- Im not sure what the maximum about I could be sanctioned is. |
| Expected problems if you tried moving into work, with support from a work coach: If I somehow managed to go to interviews and getting a job etc I expect my skin to be in constant flare between March and Oct- I imagine I will end up in hospital at some point. However my agoraphobia will probably prevent me going out and I expect I will then be sanctioned. |
| Anything else to tell us: |
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