No 4 point PIP descriptors results
| Submission ID: 1164850 |
| Date: 2025-04-10 12:27:28 |
| Nickname: Sara |
| Age: 43 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Cptsd, fibromyalgia, Functional neurological disorder, Autism, Adhd |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely as they didn't believe me the first time. I feel I would have scored 4 but they down mark you anyway. |
| Tasks you struggle with on a day-to-day basis: Ashing my hair, preparing food, washing, going out alone, driving very far, exercising much, making financial decsions, crippling social anxiety, dropping things, numbness, extreme fatigue. Everything takes so much effort so if I am able to get dressed that means I have little energy to cook for example. Even brushing my teeth is agony. My body is worse the more I try to do. I have experienced very complex trauma and then had glandular fever which set off Fibromyalgia. I am incontinent on top of it all. |
| Expected income you will lose if the Green Paper cuts are imposed: I would lose about £700 a month. |
| Expected problems if you tried moving into work, with support from a work coach: I don't know who would employ me as I am also a parent carer to 3 autistic chidlren. I tire easily and need to rest. I also have very complex trauma and cptsd so I am often overwhelmed or misunderstood. My fatigue and pain varies day to day, hr by hr. I wish I was better but after 16 years I am only getting worse. I wish I was well enough to simply enjoy life let alone work. I miss my old job every day but have lost my nurse pin now. I can't do that work anymore. |
| Anything else to tell us: I don't understand what the government want from me. All my energy is spent in the children wirh little left for myself. I need regular counselling, osteopath, continence pads and support, help with easy to prepare foods, and cleaner. We cannot afford food and clothes without the extra help so I went without. The chidlren take priority but they are also disabled. My husband works full time and then has many more responsibilities at home. I am so anxious and having suicidal thoughts since these changes came in. Yet my children need me. Being a parent carer is full time. We have to fight for their education and Healthcare needs which then depletes us. There is no social care help either. |
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