No 4 point PIP descriptors results
| Submission ID: 1164830 |
| Date: 2025-04-10 12:16:05 |
| Nickname: Claire |
| Age: 40 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Crohns disease Myalgic Encephalomyelitis (M.E.) Depression |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Zero |
| Tasks you struggle with on a day-to-day basis: I am bowel incontinent following surgery to remove part of my bowel. My crohns disease unpredictability means I can't travel far. It causes me such anxiety. I struggle with my mobility due to pain and fatigue. I walk using sticks and a roller. When I'm very unwell I use a wheelchair. I have severe fatigue which means some days I am unable to get out of bed. On these days I don't have the energy to wash, I don't eat, I'm unable to work on these days. I miss appointments, I can't read, I can't answer the phone. |
| Expected income you will lose if the Green Paper cuts are imposed: £290 per month PIP Ironically if I lose my pip, I won't be able to pay for the aids and support I need to stay in work (I work part time flexibly from home). So I might also lose my job. So I'll lose my work income. |
| Expected problems if you tried moving into work, with support from a work coach: It took me 2 years to find an employer who was willing to take me on with such a poor sickness record and allow me to work entirely from home. I couldn't engage with job centres when I was unemployed as my nearest job centre didn't have an accessible toilet. The Work coach didn't understand why I couldn't travel. They are clueless to the reality of disability and the barriers people face. |
| Anything else to tell us: This will kill people. The government keep talking about how 'genuinely' disabled people won't be affected and those who are 'permanently disabled' won't be reassessed. Yet here I am, with my 2 chronic incurable, permanent disabilities- that I've had for over 14 years. Deemed not 'genuinely' disabled enough to get PIP daily living because I can change my own incontinence pads when I sh*t myself in public. And Im not entitled to mobility support bcause I can stand up, and walk 5 meters, before I fall over. This labour government should be disgusted in themselves. |
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