No 4 point PIP descriptors results
| Submission ID: 1164622 |
| Date: 2025-04-10 10:10:00 |
| Nickname: Sww |
| Age: 27 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Ehlers danlos syndrome |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Not likely |
| Tasks you struggle with on a day-to-day basis: Struggle with anything that needs grip or bending, due to lack of strength from EDS and the dislocations. So I can't open packets without an aid, can't use the toilet without an aid to help me stand back up, I can't even open medication packets without an aid. And trying to means very painful dislocations of my fingers that take weeks to recover. It's something that effects me, every hour of every day, in ways I can't even anticipate |
| Expected income you will lose if the Green Paper cuts are imposed: £434 a month. I work so will survive, but it will mean I can't buy the products that help me, things like physio tape, insoles, things that enable me to work. So I will end up with more injuries, more time off work, I already have reasonable adjustments that allow a few more days sick leave before a work place review, so I am worried that I may end up with more ill days and formal dismissal. |
| Expected problems if you tried moving into work, with support from a work coach: Already working, with many reasonable adjustments but still have to use holiday days for some days so not to go over the sick days limit |
| Anything else to tell us: EDS is a lifelong deteriorating condition, but because of my age, fitness and family help, I am working and being productive. All my pip money goes on products to help me achieve this, without this it will impact on my ability to continue. Possibility of health deteriorating faster and working becoming impossible. There is little help for me via the NHS, you are only offered 6 weeks of physio at a time, restricted as to how many NHS insoles you can have in a year, and a medical profession who many haven't even heard of EDS, let alone know how to treat it. |
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