No 4 point PIP descriptors results
| Submission ID: 1164312 |
| Date: 2025-04-09 23:57:30 |
| Nickname: Meldrew |
| Age: 47 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Epilepsy with uncontrolled seizures, memory loss, and postictal confusion |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely. My condition isn’t visible, and even though seizures control my life, I don’t think I meet the new 4 point criteria. The system isn’t built to understand hidden risks. |
| Tasks you struggle with on a day-to-day basis: I can’t be left alone in case I have a seizure. I forget to eat, take medication, or turn appliances off. After a seizure, I’m confused and can’t communicate properly. I can’t cook, manage money, or safely go out alone. But none of that seemed to matter when I was assessed. |
| Expected income you will lose if the Green Paper cuts are imposed: Losing PIP would cost me over £500 a month. I’d also lose help with transport, my LCWRA, and support services that keep me safe. I couldn’t afford taxis to appointments or to pay someone to check in on me. I’d become isolated and at serious risk |
| Expected problems if you tried moving into work, with support from a work coach: The whole PIP process was one of the worst experiences of my life. The form was overwhelming I had to get someone to help me. The assessor was rude, cold, and clearly had no understanding of epilepsy. They described a physical exam that never happened, and the report said I was alert, well presented, and showed no signs of impairment. I’d had a seizure two days before and was barely functioning. They even mentioned symptoms that aren’t mine it was like they’d copied someone else’s file. MR was pointless. The tribunal was the only point anyone actually listened. |
| Anything else to tell us: It’s disgraceful that the government still outsources assessments to companies who don’t understand medical conditions and don’t bother to assess fairly. The NHS has all my neurology reports. Why aren’t they used? Why am I being put through this degrading process just to get the help I need to live safely? And now, with these changes, it feels like just another step toward further privatisation. More outsourcing, more contracts, more public money handed over to private companies while those of us in need get pushed out of the system. It’s not about saving money it’s about shifting it into the wrong hands. It’s an insult to taxpayers and a danger to the most vulnerable. |
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