No 4 point PIP descriptors results
| Submission ID: 1164092 |
| Date: 2025-04-09 20:57:07 |
| Nickname: WanderingStar |
| Age: 44 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: CFS Chronic back pain Long COVID PTSD Arthritis |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely |
| Tasks you struggle with on a day-to-day basis: Every day I wake up like I have a bad case of the flu, no matter how much rest I’ve had. My body aches all over, and the constant exhaustion I feel causes brain fog and makes life so hard to navigate. Any kind of activity means that I have to rest or sleep afterwards, before I am able to do something else. I find it hard to eat properly as I don’t have the energy to make meals, I rarely feel strong enough to be able to bath, and I have no social life and all my friends gave up on me years ago. I try my best to work on a self employed basis for my own pride, but I am only able to do around 1 hr of work before the exhaustion takes over. |
| Expected income you will lose if the Green Paper cuts are imposed: I would lose nearly £1000 in benefits per month (PIP and LCWRA). I would also lose all of my self employed income as the only reason I am able to work at all is due to the treatments and supplements I pay for with PIP. Presumably further down the road I would lose all income as I would be sanctioned by UC for not being able to work full time. Taking my income away won’t make me any less disabled or any more able to work, in fact it will have the opposite effect. If I have no income I will not be able to afford my home and then I honestly don’t know what I will do, if I become evicted. |
| Expected problems if you tried moving into work, with support from a work coach: I suspect I would no longer be able to be self employed, as it would not be seen as gainful. The reason I am self employed is that I can choose the hours I work with plenty of rest in between, pacing is the most important way to manage CFS. If I had a job where I had to work many hours in a row at fixed times I would not be able to do that, as I would soon experience PEM and a drastic worsening of my symptoms and I would become bedbound as I have been in the past. |
| Anything else to tell us: |
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