No 4 point PIP descriptors results
| Submission ID: 1163907 |
| Date: 2025-04-09 18:38:15 |
| Nickname: Cherrytree |
| Age: 45 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Fibromyalgia Chronic fatigue Macular degeneration Hypersensitivity |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Borderline, I think they’ll look for ways to NOT score 4’s |
| Tasks you struggle with on a day-to-day basis: Getting up, getting dressed, washing, self care such as hair brushing, cooking, eating, walking, driving, cognition… on worst days bed ridden, not so bad days I can just about manage the basics. Anything extra, any stress on the body, and I’ll have a flare and be bed ridden again, for weeks, sometimes this impacts for months. |
| Expected income you will lose if the Green Paper cuts are imposed: At least 2/3 of my income. I wouldn’t be able to heat my home - resulting in huge flares in my chronic pain. I wouldn’t be able to run my car - making me incredibly isolated and largely house bound. I wouldn’t even be able to get to hospital appointments - couldn’t afford taxis and have no one to support. I wouldn’t be able to buy healthy food, natural products to avoid sensitivity issues, so many things would be unachievable - resulting in huge rise in symptoms that make daily life unbearable. To name but a few… |
| Expected problems if you tried moving into work, with support from a work coach: If I tried to work for a couple of hours. Not only would that be incredibly painful, I’d struggle with the environment around me, scents/chemicals/lights so many things, cognition would also be a challenge, as would safety due to falls, it would all result in a major flare. Systemic Pain would be unbearable. The post exertional malaise would be debilitating. I would be bed ridden afterwards…. Maybe for a few days, maybe a week, maybe a month - you never know how long the recovery takes. |
| Anything else to tell us: Many of us who just about manage to get by currently, especially those of us single, would then require care and home help if working - even if only working minimal hours - which we wouldn’t be able to afford, increasing demands on social/care services. We would potentially lose our homes, and require social housing. All our bills would increase at the same time as income disappearing because if PIP is linked to UC and LCWRA removed we’d potentially lose Council tax discounts, social tariffs, so many things. Partners/family would lose caring benefits, having another knock on effect. Our children may lose extra financial support needed to go to Uni, having a massive knock on to future generations. I’d also like to point out - some of us who have actually been unwell a long time, but maybe didn’t claim benefits when younger and got by, not wanting to rely on the state, but have now lost the partners/family that used to support us, are not eligible for some other benefits as we didn’t have the NI contributions. If we lose our Heath based benefits we really have nothing to fall back on. We would be destitute! While some people claim PIP who actually manage to work and have a very comfortable lifestyle - so it is not fair to combine the health benefits! Some of us will be in poverty and unable to do anything to help ourselves. We are not lazy! Many of us have worked hard, have qualifications and degrees, I personally worked in both health care and education - helping others. But now I need help and support for myself. This is not how I envisioned my life. How a society cares for the most vulnerable says it all - what is our country coming to? |
Report this submission: If you see a problem, please copy the Submission ID number above and send it to us using the contact form, along with details of your concerns.