No 4 point PIP descriptors results
| Submission ID: 1163662 |
| Date: 2025-04-09 15:55:58 |
| Nickname: Jul |
| Age: 58 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Fibromyalgia, arthritis, chronic kidney disease, asthma, high blood pressure, gout, carpal tunnel syndrome, migraines. |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Not likely |
| Tasks you struggle with on a day-to-day basis: I was medically retired from work after 40 years of working. I tried for 5 years working with increasing difficulty, I went from full time to part time, to being on the sick more often than not, to not being able to work. If I conduct my life as a normal then the flare ups I get render me totally reliant on help for everything, I’m in bed for four or five days at a time, wracked in severe pain. I have to live pacing my life, ten minutes of activity is the most I can hope to achieve every four or so hours to stop flare ups, to stop severe pain. No employer would employ me when they realise how little I can realistically do without resorting to needing to lie down. |
| Expected income you will lose if the Green Paper cuts are imposed: To my understanding I would lose both PIP daily living and universal credit LCWRA, so pip at £73.90 per week= £3842.80 per year and UC LCWRA £416.19 per month =£4994.28 per year. A total loss of £8837.08 per annum. Losing that money means I could not afford to keep my house, I could not afford to live as my only income would then be basic UC which would not even cover my house bills never mind feed me. It would be totally catastrophic |
| Expected problems if you tried moving into work, with support from a work coach: Before I was medically retired, I worked full time, I couldn’t do it, so I went part time and couldn’t do that either, I was in work struggling terribly, when I came home I had to immediately go to bed as I was in so much pain, I remained in bed until I had to go back to work again, whether that was the next day or in three days time, I had to stay in bed until my next working day. I was 100% reliant on everything being done for me, I couldn’t do anything for myself, I had no interest in food, I certainly wasn't capable of making it, I couldn’t shower, the pain was so bad I could barely turn over in bed. I existed by bed, up for work, back to bed, if I didn’t have a child at home I wouldn’t have eaten, wouldn’t have washed, wouldn’t have taken a pill. It got to a point I couldn’t scrape through work either and I had no option but to take time on the sick more than I was there, eventually my children my family and medical professionals were all telling me to stop work and after a few years of trying very hard I listened to them, work medically retired me due to how little I was there. |
| Anything else to tell us: I’m ashamed that any government could treat disabled people like they are, I fully understand the need to stop people who are perhaps scamming the system and I fully understand the need to save money, but there are surely better ways to do that than the 4 point rule. I myself can come up with far better things it’s not difficult to do so. Im well aware of my capabilities or lack of. After 40 years of working the very last thing I wanted to do was stop working. I’m petrified now because I know I can’t work, if I had the option of working I wouldn’t be worried. If PIP calculated my needs as if I’ve worked a day then I would easily get 4 points as I’m in bed for four or so days after it due to the pain and am incapable of looking after myself, but they won’t will they as they didn’t last time. This is where the system will fail me. I’m so so concerned as my whole life will fall apart so quickly if this goes through. It’s shaming of them frankly. |
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