No 4 point PIP descriptors results
| Submission ID: 1163249 |
| Date: 2025-04-09 12:16:15 |
| Nickname: Harvey61 |
| Age: 61 |
| Main health condition: Mental health |
| Main conditions that affect daily living: Psychosis, GAD, OCD, Depression. |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Very unlikely |
| Tasks you struggle with on a day-to-day basis: Getting up, washed and dressed, no motivation, I'd have no clean clothes if it wasn't for wife/carer. Remembering to take medication (7 tablets daily at different times). Remembering to eat regularly and can't cook anything due to OCD (obsessing over gas hob) and memory problems and history of self harm involving kitchen knives, compulsion to cut myself with kitchen utensils. Need assistance of support worker provided by local council or wife, who is carer, to enable me to leave the house, attend appointments with GP, Community mental health team etc I cannot cope with dealing with household bills and finances, my wife is appointee and nominated person with DWP and Council to deal with all my finances. I struggle with irrational thoughts about the government, being under surveillance, I hear voices and couldn't cope alone outside. I need someone to tell me when to go to bed or else I would sit up all night. It all starts again the next day. |
| Expected income you will lose if the Green Paper cuts are imposed: I will lose my standard daily rate PIP which is approx £292 per month. However, my main problem is that my wife is my full time carer and if she loses carers allowance of around £327 per month, then she will no longer be able to care for me. My wife will be expected to look for work by uc as we will both lose the LCWRA status and the payment (approx £400) that goes with it. I will then have to go into a mental health nursing home to live as I cannot be left alone. In the past I've been a danger to myself and to other people and I have been assessed by the council as needing 24 hour support. My wife currently does this, with a small amount of respite care provided by the council, but she will lose her carer status and payment and I'll have to go into a nursing home as she'll be sent for interviews and expected to find work. |
| Expected problems if you tried moving into work, with support from a work coach: I hear voices and have irrational thoughts about technology and the government (my wife has completed this form on my behalf). I feel drawn to sharp objects to harm myself (accidentally harming my wife previously when in one of my psychotic episodes). I also do not go anywhere without my wife or support worker. If my wife could accompany me to any meetings with the work coach, if other people could be asked to leave the room and they could guarantee there would be no triggers for me, computers, laptops or any scissors etc on the desk of the work coach then I could try to attend an interview. I also pace when agitated so would need space to do this. I would need a very understanding employer who would allow me to be accompanied by my wife to work every day and for her to remain with me. Obviously, this would mean they would have to pay her too as she wouldn't be free to seek her own job. Also, I would need regular time off to meet with my social worker, community mental health team and my psychotherapist. Also, due to my anti psychotic meds I feel very sleepy during the day and would need an employer to allow me time to have a lie down. |
| Anything else to tell us: I've been in receipt of PIP for 5 years now after suffering an extreme mental health breakdown whilst working as a teacher (for over 30 years). I've only ever received the standard daily rate and always get awarded 11 points. I've never received more than 2 points in any of the descriptors. I have been so grateful to receive just the standard daily rate, enabling my wife to claim carers allowance and relieving any obligation from us to work that I have never challenged my award. Even though I have a social care assessment and written evidence of my limitations provided by my community mental health team which I send to PIP as proof of my disability and how it affects me, I never get more than 2 points in any of the descriptors. The fear that I feel whilst awaiting the results of my PIP review is awful. My PIP award affects my whole life and if it is taken away then I might as well not be alive. As you can see from my previous answers, it would have to be a very understanding employer who gave me a job. Instead, my wife will have no option but to place me in some kind of nursing home which will cost the government far more than my standard daily rate PIP and her Carers Allowance. |
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