No 4 point PIP descriptors results
| Submission ID: 1162214 |
| Date: 2025-04-08 16:47:51 |
| Nickname: Anniesmum |
| Age: 39 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Complex PTSD, Anxiety, Depression |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: I won’t be able to score 4 points on any descriptor |
| Tasks you struggle with on a day-to-day basis: Stress exacerbates my mental and physical health. I suffer from very bad fatigue so after most tasks I have to rest and go to sleep. I have to sleep a lot during the day. I suffer joint pain, nerve pain, nausea, dizziness, headaches. I cannot do tasks that have repetitive movements, these cause me alot of pain and fatigue. In terms of complex ptsd I suffer from dissociative episodes. Sometimes I have none epileptic attack disorder episodes if I feel pain triggers or memories or stress related to previous traumas. These episodes lead me to collapse and have seizures. These are psychological based but are hard to manage as my brain switches itself off when overwhelmed. I struggle with trauma so have problems when triggered or under stress as parts of my personality become disorganised and I struggle with controlling them. I have a part in particular that I struggle with that takes over control of my system this part is very violent to me and wants to kill me off. In the past this part has cut my throat and actively made suicide attempts to kill me off and the other parts of my system. This is incredibly distressing when this happens as it can happen out of nowhere. The more I come into contact with stressors and other interactions with people the more it is set off and it puts me in danger. I have to hide sharp instruments from myself and try and keep myself as safe as possible. I experience overwhelming distress when I encounter people and if someone comes towards me or there are sudden unpredictable movements from them this causes me great anxiety. All this hypervigillance causes me exhaustion and I am left in a state of terror a lot of the time. My nervous system fluctuates in fight, flight, flop states so I can never properly rest. I have a genuine fear of other people as they are unpredictable and conversations make me very on edge as i can experience triggers that remind me of previous traumas and abuse. |
| Expected income you will lose if the Green Paper cuts are imposed: I will also Lose contributions ESA support group money so I would be losing around £7000 a year if these changes come into effect. I am already doing the permitted work which is allowed under esa so I am already working. I work from my bed at home and am self employed, I love working but cannot do anymore hours due to to previous issues stated. I have to turn work down as I do not have anymore energy at all to do anymore. |
| Expected problems if you tried moving into work, with support from a work coach: I already work but it has taken me years to find a way I can work. I only work under 14 hours a week but I do my very best. I have seen lots of work coaches in the past and spoken to organisations before I got worse to see what work I could do, none of them understood the ways in which my conditions affect me. I had to explain over and over again the challenges I faced. They never listened to me and would suggest jobs where I would have to travel to work. I can not do this. I suffer from fatigue and anxiety. I would be asleep at work and not manage to do a job at all. I do not use the telephone and have to control the work I do when I have the energy. I have minimal contact with other people via email. This way I can control my interactions, a work coach would make me come in to see them. I couldn’t do this. I would be exhausted, tney would make me do jobs and apply for jobs I just cannot do. They would sanction me for not trying to do enough when I cannot physically do anymore. I cannot afford to live and survived by just working 14 hours on my current work from home job, if the money was taken away I would be destitute. I haven’t been able to do any work since these changes were announced. I have fallen into a state of hopelessness that I cannot currently shake. I feel desperate but also like I have started to give up. I feel like any progress I have made in managing my health has been eroded since these cuts were announced, I’m wondering what the point of my life is and what it will be like moving forward. |
| Anything else to tell us: I suffer very much from the conditions I have. I have worked incredibly hard and still work hard everyday to manage them but I suffer greatly still. It is like a full time job just managing my health conditions. I have strived to find my own way to work even if it is only 14 hours a week but I am proud of that non the less. These barbaric reforms have already started to erode all my previous efforts of managing and I feel desperate. I cannot do anymore and I will be pitted against people without disabilities to look for the same jobs. Who on earth would employ me when I’m completely unreliable (not by choice). I am scared that I won’t even be able to afford my prescriptions if these cuts go ahead they cost me £30 a month and that would be a large chunk of the money gone if I have to move onto this new system, how on earth will I and others survive. I am beyond angry about these evil reforms, I feel a new sense of hopelessness that I haven’t felt and I will never forgive my government for doing this to me and others. It will never be forgotten or forgiven. |
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