No 4 point PIP descriptors results
| Submission ID: 1162010 |
| Date: 2025-04-08 14:16:01 |
| Nickname: Bob |
| Age: 60 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Personality disorder F60 (BPD/EUPD) Psychosis, chronic anxiety, behavioural and social interaction problems. Cerebral aneurism, memory and confusion problems Spinal Dysraphism, (adult tethered spinal cord syndrome) Multiple level degenerative lumbar spine L1 to L4, inclusive moderate impingement at L2/L3 Meralgia Paresthetica both legs Multiple level degenerative cervical spine C5/C6 foraminal narrowing, C6/C7 impingement Bilateral cubital tunnel syndrome Bilateral hearing loss, Bilateral multi tonal tinnitus |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Psychosis, chronic anxiety and behavioural and social interaction problems, may score 4 points in the new assessment descriptors. I certainly cant take this for granted |
| Tasks you struggle with on a day-to-day basis: Making decisions can be very difficult, due in part to psychosis symptoms, dissociative and depersonalisation. Difficulty thinking clearly or logically, paranoid, aggressive and. The Cerebral aneurism may contribute to these issues , this is being investigated further. I am easily confused and overwhelmed, and prone to outbursts of frustration, I also have compulsive talking issues that have been problematic in therapy groups, most recently Complex needs service MBT course, which I found overwhelming. I am completely isolated and estranged from my family and have no support structure from family, I have no friends. I have challenged my mortality several times, feeling hopeless and suicidal most days My physical issues are many, high levels chronic daily pain and numbness in my neck, triceps, biceps. Acute daily pain, cervical spine, neck and both arms. I drop things daily, have weak grip in my hands and weakness in my arms. Sudden loss of power in my arms is becoming problematic. I struggle with cooking, cleaning and washing/dressing below my waist. I have my shopping delivered, as I no longer drive and cannot carry shopping bags. My lower spine issues are complicated, spinal cord tethering and degeneration in my lumbar spine make bending acutely painful, any twisting movement is agony. I have difficulty walking, with the issues in my arms, mobility scooters are not an option for me. I walk with a stick, this is becoming problematic with the weakness in my arms. As a consequence, I only leave my flat for medical appointments and therapy, this has contributed to my socialising problems. I struggle to stand for more than 2 or 3 minutes, sitting can be problematic, having to change position frequently again 5 minutes in one position is painful, upon standing my legs are numb. My sleep is disrupted and erratic in the context of when I sleep. I have not slept longer than 90 minutes, for years, without being woken by pain in my legs spine and arms. I wake with numbness and pain in my legs, feet, arms, hands, neck and lower spine is painful. Every day, tinnitus is deafening and contribute to my short temper, being hard of hearing is helped by hearing aids for both ears. Hearing aids do tend to amplify all noise, tinnitus continues to be miserable. There are other issues with my health conditions that have impact, however in the spirit of “a few sentences”, the above are my main problems. |
| Expected income you will lose if the Green Paper cuts are imposed: I could lose my Daily living allowance. Across the current descriptors, I scored 14 points in 2021 at last assessment, by telephone. I have reported my social interaction as being limited for over 10 years. I do feel this issue is worsening as I get older, increasingly effected by pain issues, confusion and dissociation, frustration, overload and constant deafening tinnitus Social interaction may score 4 points in the proposed descriptor, however I feel DWP/HAAS assessor would challenge this, which may cause a frustration outburst, definitely will force me to peruse the mandatory reconsideration, possibility of tribunal |
| Expected problems if you tried moving into work, with support from a work coach: Work coaches without the knowledge to fully understand, significant severe psychiatric disorders or indeed the expectation of safe repetition of tasks due to physical restrictions. It has been suggested that the DWP will recruit more work coaches. If my daily living is stopped, who will pay for taxis to and from Job Centres, interviews etc? Okay, so we can use teams, zoom or WhatsApp (examples), we are back to work coach ability to take account of health impacts. Also, how is any of this fair to employers? Who as a, competent professional recruiter or HR interviewer, is going to find someone like myself "employable". This would include reliable and sustained attendance, without incident, accident or danger to the individual or colleagues. How would a work coach approach someone in a vulnerable or malleable state. When you agree to suggestions, work goals or whatever catch term is used, are you agreeing to something over which, you have no control ? I feel that would stray into coercion. |
| Anything else to tell us: I have spoken to my GP, today and have full support. This is a new GP, following my last GP's retirement, I have at least one GP appointment a month, this has been the case for the last 2 years. I have had access to tier 3 mental health services like complex needs service I have annual, full spine MRI, annual head MRI or CT scans, annual nerve conduction studies for my arms and legs. I have blood tests at least 4 times a year due to complications with my meds, and boy that is a list too. I have 12 different medications, 3 of which are controlled substances, 2 of my meds make me drowsy and one of them, if my BP is high has made me quite obnoxious on occasion (pregabalin), it is known to be effective for nerve pain and it is also known for accelerating psychosis symptoms. I have had a little trouble with the form due to clumsy typing skills. There is so much more, but we will be here for a long while. Weather you consider what I have written, or what others have written there is something you should be aware of in all cases. Disability is chronically misunderstood, wilfully misrepresented in the media and cannot be fully understood by people who are fit and healthy. We do not choose our health issues and no one is a like for like comparison , we don't win any prize or trophy. I agree the benefit system has been overrun, I believe it has been a barrier to work and a terrifying ordeal to apply for. This applies to all applicants, we lose sleep, appetite and our soul in the process. While MP's get expenses for excesses, many of them are not in need of money from the state. Nonetheless they claim for floating duck houses and moat cleaning (circa 2008/ 2010). I have far more to say, but by now I expect your eyes have glazed over. |
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