The DWP have revealed the draft criteria they will be using to select claimants for the Severe Disability Group, which will allow fast-track claims for disability benefits.  Benefits and Work would like to know if readers with severe, lifelong conditions think they would meet the criteria.

What is the Severe Disability Group?

The purpose of the Severe Disability Group is to improve the disability benefits assessment process for claimants who have conditions which are severely disabling, lifelong and with no realistic prospect of recovery.

Claimants who fit the criteria will not need to complete a detailed application form or go through a face-to-face assessment in order to claim personal independence payment (PIP) or to be found to have limited capability for work-related activity (LCWRA) for employment and support allowance (ESA0 or universal credit (UC).

The introduction of a Severe Disability Group was first consulted on in the Health and Disability green paper in 2021.

The resulting Health and Disability white paper published in 2023 revealed that design and testing of the Severe Disability Group had already begun.

The DWP have now announced that they are widening the testing of the Severe Disability Group, with two separate tests taking place, both relating to PIP.  There is more on this below.

How the Severe Disability Group works

Where a claimant is considered likely to meet the criteria for the Severe Disability Group, a short form will be sent to their specialist clinician.  The form is similar to the SR1/DS1500 form used for claimants who are terminally ill.

You can download a copy of the SR1 form from the response to this freedom of information request.

If the specialist confirms that the claimant meets the criteria, they will not be required to attend an assessment and will no longer be required to fill in complex forms, such as the PIP ‘How your disability affects you’ form or the ESA50/UC50.

Testing the criteria

The DWP are currently running two tests of the draft Severe Disability Group criteria

One test involves asking a selected group of clinicians to identify patients they believe are suitable.

The other test involves the DWP contacting claimants they consider to be likely to meet the criteria and asking if they would be willing to take part.  If they are, the DWP will then contact their clinician and ask them to complete a brief form. 

The DWP have said that participation is entirely voluntary, claimants can withdraw at any time and they “will not be financially disadvantaged by taking part.”

Official criteria

In order to meet the Severe Disability Group criteria, the DWP say claimants must :

have an irreversible or progressive condition, confirmed or managed by a secondary care specialist, with no realistic prospect of improvement 

have had no significant response to treatment, or treatment will not improve function, or no further treatment is planned

have a severe impairment of physical or mental function (or likely to develop this within 6 months) such that they need assistance from another person to complete two or more activities of daily living

The Secretary of State is satisfied that, for the individual patient the criteria have been fulfilled for: 
enhanced Personal Independence Payment (PIP) daily living or mobility components
functional limited capacity for work-related activity (LCWRA) or support group

Our interpretation

There is no published official guidance on how to interpret these criteria. So, please be aware that the definitions below are our understanding of the criteria, they are not official definitions.

An irreversible condition is one that may not deteriorate further but will also not improve, such as a learning disability, ADHD, spinal cord injury or cerebral palsy.

A progressive condition is one that is known to deteriorate, such as osteoarthritis, Parkinson’s disease, COPD or Alzheimer’s disease.  

A secondary care specialist is someone who is not in the first line of treatment.  So, a GP or mental health nurse would not be included, but a cardiologist or a psychiatrist would be.  It appears that you don’t need to be currently seeing a specialist, but you need to at least have had your condition confirmed by a specialist.

There is no planned treatment that will improve your condition further.

Your condition needs to affect two or more activities of daily living to the extent that you need assistance from another person.  These activities aren’t defined, but the list of PIP daily living activities would seem to be a likely place to start.

For PIP, you need to be able to meet the threshold for an enhanced award of the PIP daily living or mobility component.  If you don’t already get an award, you can check the criteria using the Benefits and Work PIP test.

For UC or ESA, you need to meet the criteria for being in the LCWRA group or the support group.  If you don’t currently get either of these benefits you can our UC WCA test for LCWRA or use our ESA test for the support group.

Would you qualify?

The DWP say they worked with specialist health professionals to develop the criteria and also consulted with several charities.

But, as always, they don’t seem to have talked to any of the claimants who will be on the receiving end of this system.

So, we’d like to hear your opinions and queries about the criteria in the comments section below. 

And, if you currently get at least one component of PIP at the enhanced rate or you are in the LCWRA group for UC or the support group for ESA, do you think you would meet these criteria and be eligible for the Severe Disability Group?  Or is there something about your condition, your contact with health professionals or something else that you think would threaten your chances?

You can read the full Severe Disability Group test: information for clinicians  Please note: considerably more details about the Severe Disability Group criteria were added to the DWP web page on 27 February.

Comments

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  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I'd definitely qualify - I have ME, Poland's syndrome, cervical stenosis and spondylitis, and arthritis, carpal tunnel syndrome of my non-PS affected hand, with the arthritis getting worse.
    There's no treatment for any of this, only symptom management; taking shed-loads of drugs to cope with the symptoms, plus more drug to counter the side effects of the pain meds :(

    I already have an indefinite enhanced award for both care and mobility, and need support for most criteria.

    The average life expectancy for ME is 55, people with PS are more prone to some cancers. I told my last assessor not to bother coming back when I was 70, as I'd probably be dead! I'm 64 currently.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Shirley There is treatment for carpal tunnel syndrome. Day surgery under local anaesthetic. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have had Fibromyalgia and Chronic Fatique Syndrome for over 30 year's. I now use a wheelchair. I receive PIP at full personal care and half mobility. I just wondered how people like me would qualify for severe disability. Evidence is difficult to obtain as doctors just wash their hands of patients like me. I was diagnosed by a rheumatologist many years ago and have never seen a specialist since so I would miss this criteria.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have COPD, Diabetes, ME, Hidradenitis and Osteoarthritis, but I only see my GP or the dedicated Nurse for two of the conditions listed above. So despite me being in a poor state healthwise I don't think I would qualify because I very much doubt they would take the word of a Nurse if even a GP isn't considered qualified enough to sign off on this! Fortunately for me I am also on SP, so it's only PIP I need to worry about and my last renewal a year ago was given a ten year award. My heart breaks for any poor beggar in this terrible trap.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I,ve got idiopathic pulmonary fibrosis i,m on nintenadib 150mg theres no cure these tablets try and help slow down the progression my finger nails are already clubbed i have blood test once a month a lung funtion test every 3 months...i,m also autistic i have ibs which is made worse cos of the meds i,m taking i suffer with mental health back and knee pain so anyone tell me what are my chances i,m in esa support group i get an sdp with that i also get full pip both enhanced so can anyone tell me what are my chances of not having to go through these degrading assesements again...
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have caude equina, osteo arthritis, fibromyalgia, M E, degenerative disc disease. Qualify under criteria for PIP but not under care of any specialist, basically have to "live and manage it best I can" with repeat meds.  Also despite me requesting multiple times to my G P to update my medical record accordingly I have been unsuccessful and have now given up. Where would I stand ? Who would DWP write to as I do not have anyone who could confirm this ? 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have various health problems including compressed nerve in my back, fibromyalgia, depression/anxiety at various degrees, high blood pressure, thyroid.  I have also developed high urate levels which is giving me pain in joints specifically my shoulders which make them weak.  Due to the blood pressure problems/medication I am constantly I struggle with lack of breath when walking especially hills and doing any more than 10 minutes housework leaves me in pain for at least an hour after.  I have been assessed for LCWRA but was refused PIP because I can walk more than the few yards they deem is enough and I can wash/dress myself although this takes great effort.  I only go out twice a week to a mental health charity group for 3 hours each time but by the time I get home I feel awful.  I know there are a lot of people who are worse than me but I have been assessed by my GP (in France) previously which states that my back problem is progressive and the UC have a copy of but this made no difference to the PIP claim.  When living in France I had physio nearly every week for 8 years but it seems that 'foreign' paperwork is not really taken into account.  Would it be worth me trying for this or would I be deemed, as the PIP assessed about 6 months ago as being 'able bodied'?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Seems my sister with learning disabilities would qualify with the exception of this ‘secondary care specialist’.  I have no idea who this would be.  She is 61 years old and was subjected to lack of oxygen at birth.  Who can confirm this if not her GP? 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have ASD & my psychiatrist told me there is nothing he can do for me so where does that leave ASD sufferers?

    I notice that they now want to move the goal posts AGAIN in forcing the claimant to be under the care of a specialist which is rich seeing as though the DWP habitually ignored the claimants testimony and disregarded the testimony of a lot of claimants specialists.

    This is YET more fraud & chicanery from the DWP😷💩
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    This criteria should obviously include autistic people whose condition is lifelong and who are particularly vulnerable to the stress and anxiety caused by face-to-face assessments. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have heart failure and angina. I have also had a stroke and am brain damaged. I also have degenerative joint disease.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I am severe to profoundly deaf and also have macular telengiestica, neither will get better and both are deteriorating. I wonder if I’d fit the criteria. 
    I had to go to tribunal every time and had been on standard rate for years. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    This actually might not be a bad thing - is my first thought. I think it will depend on how they implement it.
    I’m enhanced rate PIP in both areas and limited capability to work under ESA. My last assessment was done on paperwork alone. My concern is the implications for people who’s disability is primarily mental ill health (like myself), access to Psychiatrists is limited and if they don’t consider Secondary Care psychiatric nurses (care coordinators) as sufficient evidence than I think this might disproportionately impact disabled people living in the community with a mental illness. 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Anonymous It's going to disproportionately affect ANYONE who is not seeing someone above the level of a GP. Lots of conditions these days are managed by specialist nurses attached to the GP Surgery and you never even get to see a Consultant in the field you have been diagnosed with! And for ME, my particular area doesn't even have an ME clinic anymore and even when it did it was run by a GP.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have Spina Bifisa Occulta  with a spinal cyst 
    Pressing on my nerves that I have to use crutches ;  mobility scooter to get about - unable to walk unaided.  I am now on Enhanced Rate Pip care ; mobility & I'm in Esa Support group.  I won't get better , as I'm getting worse each year, as Dr said my SPO is near top end of spina bifida & cannot do anything to improve things & trying to remove the cyst would paralyse me ... I also have arthritis in hips, knees, hands ... I have Sacro Illiot Joint pain injections every 6 months to help with the pain, & on strong painkillers.. I am unsuitable for hip replacement due to my disabilities .. My left hip & back have degenerated further ... So technically I should qualify ... My husband washes me as I'm unable to lift legs to get into Bath to sit on board for shower,, and help me wash hair ... He does the cooking as I cannot do repetitive & drop things alot due to my Carpal Tunnel leaving hands weak & wear hand supports for this & a knee splint to give my knee support while keeping changing legs when walking very short distance as knee 
    & back & left leg gives way without warning ... lots of other issues ... 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Based on the criteria above I would qualify. How do I take part in the research mentioned? 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    People are being quite negative about this announcement, but I only see it as a good thing. If some people are spared pointless reviews as they have certain disabilities then great. Do I think I’d qualify, probably yes. Congenital disability, three out of four limbs affected, only one hand, full-time wheelchair user. ESA Support Group coming up 10 years now, never had a 
    secondary care specialist, so perhaps I would not be able to get that form filled out, my contact with health professionals is very limited, although severely disabled, I’m relatively healthy and only see a GP or practice nurse now and again, and that relates to health not my disability and day to day life.  

    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @TwistedWitch That would be unfortunate but for those who get in the severe disability group it is a good thing for them.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Dave Yes, it can be looked at as a very positive approach to the problems we have been experiencing with the PIP assessments so far, nevertheless, I have a bad feeling that this change actually means a tendency of the DWP to gradually change the overall criteria of the assessments and, in the end, only people with these very severe conditions will be considered eligible for any PIP. The others will be shooed back to work no matter what. 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Dave Dave, you have hit the nail on the head with the second half of your comment. This new proposal presupposes that the claimant HAS a specialist consultant.  I am sure that no-one would disagree that sparing some people pointless reviews would be a good idea; why were the lifelong DLA awards replaced by time-limited PIP awards? Claimants with progressive degenerative diseases should NOT be subjected to regular reviews, but some of them will no longer be under a specialist consultant because there is no more that the medical profession can do for them except sign repeat prescriptions.  As it stands, the proposal runs the risk of excluding the very people that it is meant to help simply because they cannot jump through the prescribed hoop - it'll be another case of "computer says NO."
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Dave So if you are unable to get the form filled out, because you don't have the required 'specialist' how can this be a good thing?
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have multiple maeyloma,,and it will never improve,if anything only get progressively worse.My future is somewhat blesk.I am in pain every day snd am awoken at night due to the pain also.My wife has to help me do certain activities,,such as dress myself,get bathed..ie have a shower,step into and out of the bath.These are just a couple of items ,but there ate more she does for me,like reminding me to yske medication
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have Alexanders Disease, compacted discs in my spine and arthritis in several joints. I'm unable to move around without a powerchair and don't go out much because I feel vulnerable on my own. I need a new powerchair as the one I have is causing problems and I totally rely on it to get around my home. I've spent money on various things to make life bearable and have asked DWP if my PIP can be reviewed so I can get enhanced mobility to help me pay for this. Bottom line is "no, you're too old"! I was shocked and extremely upset that once we are retired we are unable to get the help we need. Does anyonre know a way around this dilemma please?
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Christine Scott
      Christine, I recommend looking up Turn2Us, it's a charity grant database.
      I got my lightweight powerchair fully funded by a charity named the Elizabeth Finn Fund I found through them, and the process was relatively simple.
      This is an option you may not have considered.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Steve Steve when your wife retires she should be able and get AA
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Christine Scott Hi Christine, please get some advice from citizens advice, welfare rights or a similar type agency. If you are on PIP prior to reaching pension age I would have thought you could get a review. I am no expert though.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Nicky Sadly Christine is correct. Yes, if you are in receipt of PIP at SP age and you still meet the requirements you can continue to receive it, but what you cannot do is add in a claim for mobility, or increase the mobility component because as Christine said 'you are too old'. The DWP are of the mind that of course you will have mobility issues, you are a pensioner after all. The irony of this, of course, is that up until 65 years and 365 days you are considered 'young' enough and fit enough to continue in the world of work. You only turn into an old crock who will naturally have mobility issues at 66 years plus!
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Nicky I agree with Nicky. My wife continues to get both elements of PIP but lost esa when she reached state pension age.

  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    My husband had a relatively rare nerve condition which left him with spinal nerve damage. He has reduced lung capacity and nerve pain and spasms throughout his body. The consultant he saw (many years ago) has no idea how this affects his daily life and was unsympathetic with regard any nerve pain. It has been years since he attended pain clinics and was signed off to the care of his GP.
    He has also been diagnosed with Bi-Polar Disorder and has seen a psychiatrist. 
    I don't believe either secondary care specialists would be able to give a proper assessment other than confirming the diagnosis. The medical system does not consider how different conditions impact on an individuals life, a GP would be able to give a better judgement. My husbands nerve condition is not particularly well known and never shows in any list of recognised conditions. I also find it doubtful that a consultant who saw my husband nearly 20 years ago would have anything useful to say. 
    My husband has been placed in the support group for ESA - we were very fortunate that the last assessor was familiar with the condition but it is a gamble that the next will be as knowledgeable.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    If we don't fit into a neat little box,as usual, we will be overlooked, disregarded ,ignored, or played down.
    I see no credible help here at all with this.
    Like support group.. Now they want to try to get us off there by changing the criteria.How does that help us who've been placed there for very valid reasons and for years?
    It's not about helping us. It's far from it.
    They continue to throw more and more changes around, without remotely knowing how it will work until we are left even more confused than when we started. 
    I'm sceptical about anything they churn out. 
    All they do is drive my fear.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @The Dog mother I share your concerns, and don't trust the dwp. My wife has a genetic condition inherited from her mother which is progressive, disabling, incurable and untreatable. Two years after being granted enhanced for both elements of PIP she was "reassessed" and her care was reduced to standard and she lost mobility completely. The levels were reinstated following a  mandatory reconsideration. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have multiple sclerosis ,  no more treatment just carry on with meds, no more can be done just monitored,I also  have severe sleep apnoea  using cpap at night rang dwp told I'

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