ANGINA and Mobility

Hi Fleur

We can't say whether something applies to you or not because we don't know you or your circumstances, but it sounds as if it could. I'm going to put in part of a post that one our mods LL26 wrote about safety and reliability for another memeber, and it may help you understand it better and the sort of thing you will be able to argue on your form.

Regulation 4(2A) PIP Regs 2013 provides that all PIP descriptor activities have to be completed
• safely
• repeatedly
• to an acceptable standard
• within a reasonable time

This is the so called 'reliability' criteria - all 4 must apply- if you fail to meet even just one of the four this indicates you can't do that descriptor and may need help, an aid or actually can not do the task

Safely - is there a substantial risk that harm might occur? So, if you have epilepsy, and a fit could occur causing danger then this indicates eg supervision for bathing- it doesn't matter whether the likelihood of the fit is infrequent; clearly a fit in the bath could have very serious consequences. Safety issues could comprise dropping knives, or hot pans/food whilst cooking or eating, but could also include leaving the cooker on, and running the risk of fire etc. Falls indicate safety issues, not hearing traffic coming could indicate the need for supervision if out walking.

Acceptable standard is not defined but kind of means the level of completion expected by others. Leaving large messes whilst cooking, or constantly spilling food off the plate or food probably isn't acceptable. Only being able to hear half the words being said is unlikely to be acceptable. Putting on clothes upside down or back to front with buttons not aligned with the button holes is unlikely to be acceptable.
In addition, significant amounts of pain will also be 'unacceptable".

Reasonable time- this is defined as no more than twice that of non disabled person. If you take too long again this shows a need for an aid or physical help.
Some of these criteria overlap- if you are too slow then this probably isn't acceptable. Leaving slip hazards in kitchen could be both unsafe and unacceptable.

Finally consider repetition, tasks need to be done as many times a day as reasonable. The repetition rate will vary across the descriptors.You might wish to cook 3 times a day. Toilet needs with incontinence might need to be managed 10 or more times per day. With journeys and walking this could be 6 or 7 times per day. Bearing in mind the journey could be by car or public transport, but inevitably will involve at least a few short steps to the car and into the nearby building. It would not be unreasonable for someone to take kids to school, go to supermarket, need to go and get new shoes, walk back to car via card shop. Go home.Write card and go to post box. Pick up the kids. Visit mother in evening. None of these journeys or small amounts of walking would be unreasonable, and perhaps one of two more might be required. Communication could however be required 24/7.

You need to be able to do all the required repeats acceptably safely and within the appropriate time for each descriptor. If you fail to repeat except for a trivial time eg 5 mins of the day you can't communicate you can achieve points in accordance with the level of disability under the relevant descriptor.

A descriptor will be met if you can't achieve any/all of the 4 criteria for the majority of days. This means that if you have a better day every so often, that won't preclude points/award of PIP.

Fatigue could also comprise non acceptable standard. It is easy to consider each descriptor task in isolation. Think about the descriptors holistically.
So...if I asked you, do you cook? - if you told me yes, but only when I don't go walking, and it's not the day I have a bath. This would suggest you can't repeat all the activities across the day. Likewise if fatigue, pain breathlessness increase in blood pressure, etc makes activities too slow, this might indicate a problem with repetition as well as being unacceptable standard, and perhaps not safe.

Filling out PIP forms requires a bit of lateral thinking. Consider what makes the activity difficult or impossible. If you had help, why would you need it, and what help would be required. Is it always at the same time, or does it depend on energy/pain levels etc? Try and quantify the help you get, or realistically should have. Disabled people who live alone or have little help often have a stark choice- try and do something, - it may take a while, be only half done, it may risk safety etc, but the alternative is to sit in the chair and do nothing.

Be realistic as to your limitations!
If walking (or other descriptor activity) is now worse or needs more help, is now much slower, more unsafe etc, then a higher points value is appropriate, and this may be more than what you scored last time.

It’s not about diagnoses. It’s always about how your illness or disability affects you doing each section of the form.

Remember the key phrases of Safely (can you do something safely), Reliably (if you can do it can you do it reliably?), Repeatedly (can you do that task repeatedly as much as necessary), and Acceptable Standard (is that task you have done to an acceptable standard?)

Whatever issues you are arguing they have to affect your for four days out of seven.

BIS