ESA Appeal for 0 points for a disease called fabry

dean stockton wrote:

I woul never give the DWP or ATOS a contact number as you have little or no proof of what was said.
I was asked for a phone number by the DWP when I complained to the BDC in Leeds and I replied that all communication would be by letter or email, I doubt it went down well with them but I don't care.

I can see within a year that you have to talk on the phone or text phone the back , log will see them with no choice but to do things this way, they would have to record all calls and keep them ... there has been a bit publisherd in the past about this and the changes to IB where people on IB moving to ESA this has been already spoke of as first contact being by phone and calling back to check on things ... best we all buy recorders

hi, yes you are right, fabry's disease is an enzyme prolem where the body does not produce an enzyme to get rid of fat in the bollod. It is a life threatening disease with a multitude of horrible symptoms and like me certain patients need to have iv infusions every two weeks with a drug called replagal
susan