Advice regarding DLA

Hi

I was just wanting some advice, I have been in receipt of DLA since January/February of this year, although we weren't aware of what exactly was wrong with me.

I recently, however have had a diagnosis of a lonstanding brain stem lesion, and was just wondeing whether I have to inform them now that I have been diagnosed, and if I have to send any evidence of the diagnosis, etc??

serene_butterfly wrote:

Hi

I was just wanting some advice, I have been in receipt of DLA since January/February of this year, although we weren't aware of what exactly was wrong with me.

I recently, however have had a diagnosis of a lonstanding brain stem lesion, and was just wondeing whether I have to inform them now that I have been diagnosed, and if I have to send any evidence of the diagnosis, etc??

good question you get dla for your needs not the illness....that said now you know whats wrong with if your original award for a limited time the problem they now know you have might give you a longer award time at renewal IMO

by the way did you mean "long standing" ?

also are your problems mobility ones? and of course balance ?

serene_butterfly wrote:

Hi

I was just wanting some advice, I have been in receipt of DLA since January/February of this year, although we weren't aware of what exactly was wrong with me.

I recently, however have had a diagnosis of a lonstanding brain stem lesion, and was just wondering whether I have to inform them now that I have been diagnosed, and if I have to send any evidence of the diagnosis, etc??

Hi,

As you now have a definitive diagnosis, you must let the DLA Unit in Blackpool know as it's a material change in your circumstances. It would be better if you could follow this up with a letter from your Consultant confirming your diagnosis.

What normally happens then is that a Decision Maker will review your case and
decide whether or not your mobility and/or care needs have worsened.

Good luck.

Pat

Yes, sorry I did mean 'long-standing', the dizziness is so bad sometime, I often mistype my words!!!

Yes, my problems are mainly mobility, so things like balance is very difficult and often fall a lot, and am unable to go out by myself in case I have a fall or my vision sometime becomes impaired, with double vision.

My legs are also a problem as they often feel very stiff and heavy and get tingliness in them, so am unable to stand up for very long, 30 minutes is probably the maximum and my legs often give way from me if I do stand up for longer than that

serene_butterfly wrote:

Yes, sorry I did mean 'long-standing', the dizziness is so bad sometime, I often mistype my words!!!

Yes, my problems are mainly mobility, so things like balance is very difficult and often fall a lot, and am unable to go out by myself in case I have a fall or my vision sometime becomes impaired, with double vision.

My legs are also a problem as they often feel very stiff and heavy and get tingliness in them, so am unable to stand up for very long, 30 minutes is probably the maximum and my legs often give way from me if I do stand up for longer than that

if your vision is a problem then ask for a vision asessment whoever runs the blind/partily sighted register in your area for your council will be able to help...it could be a charity... I am not sure if the assesment can be done without registration but if it can, its a document that would help your dla claim


by the way the vision asessment I talk of, is not the one a dr does when they register youblind or partily sight its more like a special OT report just on vision. its on pratical problems you have

hi can someone please advise me on how i can claim carers allowance for my husband he gets dla but without the carers compoment it is the highest rate i am the one who looks after him i have done for the last 9years i think he gets it as a mobility one as he suffers with artritis but he also suffers with depression asthma and he is dietbetic he had a mental breakdown about 4years ago and i got told to try for carers allowance but welfare rights said i could,nt claim it because he was.nt on care compoment with is dla and they also told me he could loose this if i put in a claim i am now suffering with arthritis myself but am waiting to hear from them to see if my claim will be accepted i had to bathe wash change is clothes and everthing else for the 9 years he is still on all medication and i still have to prompt him about looking after himself and also make sure he still takes is medication but now i find with my arthritis in my hips spine knees so cant help him as much now what help is there for such as me please regards ann