Charcot Marie Tooth & DLA claim

Hi,
I am new to the site and I would like to hear from any one out there that has Charcot Marie Tooth and their experiences of claiming DLA? Both myself & my youngest son have thsi condition; at present we are at the appeal/tribunal stage of DLA and I am hoping that we can get a few tips to help!!

Helen wrote:

Hi,
I am new to the site and I would like to hear from any one out there that has Charcot Marie Tooth and their experiences of claiming DLA? Both myself & my youngest son have thsi condition; at present we are at the appeal/tribunal stage of DLA and I am hoping that we can get a few tips to help!!

I'm afraid I have never heard of the medical condition known as Charcot Marie Tooth, so please pardon my ignorance.

As you are now at the appeal stage of the claim, I would suggest that you refer to the guide entitled "Support for Clients with DLA & AA Appeals" in the DLA Resources area under the sub-heading DLA Appeals HERE.

Looked it up -- pretty nasty (and nowt to do with dentistry)...

www.bbc.co.uk/health/conditions/charcotmarietooth1.shtml

Hi Helen... I have a few pointers on this let me have your email address ....

Hi Tommo
Any advise/tips with this would be brilliant. My email is: This email address is being protected from spambots. You need JavaScript enabled to view it.
Thanks for your time.

Hi helen, Todays Express page 35 has an article all about Charcot Marie Tooth. It may be useful for you. Best Wishes, (20th April)