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PIP Public transport issues
- NXB
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4 months 2 weeks ago #292817 by NXB
PIP Public transport issues was created by NXB
Hi everyone
I've been a member for a while but this is my first post.
I recently had my PIP assessment call and have a copy of the report. I haven't had the PIP letter yet but it looks like I didn't score any points in Planning and Following Journeys and I'm looking for some advice on what's realistic.
I can and do drive a (automatic) car but find following unfamiliar journeys difficult. I often get lost, miss turn offs, and get very very stressed as a result.
However, the biggest problem is using public transport. I have ADHD and an auditory processing disorder.
One of the ways it manifests itself is that I'm extremely sensitive to sound and other people's behaviour. I get irrationally (I'm told) angry by sharp sounds and noise caused by others, such as eating, phone and tablet noise. It consumes everything from that point onwards and it takes every ounce of self control to not make a scene. I get extremely anxious before travel about a seat being available (I have chronic fatigue). I use noise cancelling headphones but sometimes I forget them, or need to listen for announcements.
I'm also very disorganised and forget or lose things. My husband sorts all of this out for me, makes sure we get to the airport, train station or bus stop on time, keeps hold of tickets until the time I need them and basically makes sure we get from A to B. Without him, I'd miss journeys and not get there, or be constantly anxious about where my ticket is etc. So I CAN travel on my own but the anxiety is even higher.
Does anyone know if this means I should score points? Is it worth appealing the lack of awarded points?
Many thanks in advance
Nicola
I've been a member for a while but this is my first post.
I recently had my PIP assessment call and have a copy of the report. I haven't had the PIP letter yet but it looks like I didn't score any points in Planning and Following Journeys and I'm looking for some advice on what's realistic.
I can and do drive a (automatic) car but find following unfamiliar journeys difficult. I often get lost, miss turn offs, and get very very stressed as a result.
However, the biggest problem is using public transport. I have ADHD and an auditory processing disorder.
One of the ways it manifests itself is that I'm extremely sensitive to sound and other people's behaviour. I get irrationally (I'm told) angry by sharp sounds and noise caused by others, such as eating, phone and tablet noise. It consumes everything from that point onwards and it takes every ounce of self control to not make a scene. I get extremely anxious before travel about a seat being available (I have chronic fatigue). I use noise cancelling headphones but sometimes I forget them, or need to listen for announcements.
I'm also very disorganised and forget or lose things. My husband sorts all of this out for me, makes sure we get to the airport, train station or bus stop on time, keeps hold of tickets until the time I need them and basically makes sure we get from A to B. Without him, I'd miss journeys and not get there, or be constantly anxious about where my ticket is etc. So I CAN travel on my own but the anxiety is even higher.
Does anyone know if this means I should score points? Is it worth appealing the lack of awarded points?
Many thanks in advance
Nicola
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- Gary
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4 months 2 weeks ago #292869 by Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by Gary on topic PIP Public transport issues
Hi NXB
Welcome to the forum.
You might want to have a look at the following FAQ which explains where everything is; www.benefitsandwork.co.uk/guides-for-claimants/faq/forum.
Thank you for your question, LL26 did a very good post on the subject PIP and driving; www.benefitsandwork.co.uk/kunena/10-dla-...8543-pip-and-driving
The Going Out activity looks at three things.
Planning a route - this is primarily a cognitive or sensory (e.g. blindness) activity. You are being asked about the problems you would have with working out how to get from one place to another, you do not need to be able to follow the route that you are planning.
Undertaking a Journey - this is to do with mental health issues such as agoraphobia and social anxiety and is concerned with you leaving the house to go somewhere, they will be interested in the things that stop you doing this. You need to show that you would suffer "overwhelming psychological distress" to meet the criteria.
Following a route - This activity about the problems you would have navigating a route. So are there any problems; cognitive, sensory or mental health issues that would prevent you from doing this? This is different from undertaking a journey, in fact, if you cannot undertake a journey then you will not score points for following one and vice versa.
If you say your walking is restricted, you would need to be unable to reliably walk more than 50m to score sufficient points for an award just on the Moving Around activity.
Do you reasonably fit any of these criteria?
Gary
Welcome to the forum.
You might want to have a look at the following FAQ which explains where everything is; www.benefitsandwork.co.uk/guides-for-claimants/faq/forum.
Thank you for your question, LL26 did a very good post on the subject PIP and driving; www.benefitsandwork.co.uk/kunena/10-dla-...8543-pip-and-driving
The Going Out activity looks at three things.
Planning a route - this is primarily a cognitive or sensory (e.g. blindness) activity. You are being asked about the problems you would have with working out how to get from one place to another, you do not need to be able to follow the route that you are planning.
Undertaking a Journey - this is to do with mental health issues such as agoraphobia and social anxiety and is concerned with you leaving the house to go somewhere, they will be interested in the things that stop you doing this. You need to show that you would suffer "overwhelming psychological distress" to meet the criteria.
Following a route - This activity about the problems you would have navigating a route. So are there any problems; cognitive, sensory or mental health issues that would prevent you from doing this? This is different from undertaking a journey, in fact, if you cannot undertake a journey then you will not score points for following one and vice versa.
If you say your walking is restricted, you would need to be unable to reliably walk more than 50m to score sufficient points for an award just on the Moving Around activity.
Do you reasonably fit any of these criteria?
Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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